Sunday, November 23, 2008
Trike training
Saturday, November 15, 2008
Casualty of the Economy
I'd saved up 27 days of paid time off this year, anticipating possible brain surgery, which didn't have to happen after all. Plus they gave me a severance package, so that helps.
I do already have some exciting prospects! I'm not saying there aren't some rough times ahead, but Troy and I have been praying about this. We've been concerned about my job for several months, and really struggling with what God wanted us to do. I guess he gave us an answer. Now we're just searching for that next step.
Please keep us in your thoughts and prayers as we consider the possibilities. In the meantime, we're busy preparing for my family over Thanksgiving and Troy's family for Christmas. That should be enough to keep us busy for the next couple of months!
Wednesday, October 8, 2008
Countdown to 40...
I loved them when I was young. It was a HUGE deal to have a birthday and get flowers at school. It was great having sleepover and skating parties and getting drunk when you turned 21 or getting your driver's license when you turned 16. Then I turned 29, and the thrill was gone.
Who wanted to be 30, with no husband, no kids, no house, just a dog, a cat and a morning TV job to show for myself. I decided I was done.
My parents hadn't made a big deal of birthdays. While I never gave up Nana's birthday dinners, or Kristi's phone calls on my birthday to sing the "happy birthday" song first thing that morning. But otherwise, no hooopla for me.
Maybe I'm older. (Yeah, like I could stop that from happening) Maybe I'm wiser. May it's just that considering whether you might have a brain tumor, might die, etc... really makes you think about your life. I'm actually looking forward to my birthday this year.
It's a biggie. I'm going to be 40! I never imagined this is what 40 would be like, but I wouldn't have it any other way. I have a wonderful, caring, supportive husband. I have two adorable, healthy, happy (when they're not in time-out or teething) children, a house, two dogs who shed on everything, a job, friends, family, and oh yes, another year of life.
Don't get me wrong, I hate the fine lines and I'm using every cream I can afford! I hate the "really blonde" hairs that Troy spots and I'm relying on Natural Match 7C to keep those at bay. I hate the fact that I'm larger and droopier and ache more than ever. But that's part of getting older, and getting older means I'm enjoying more of those wonderful moments with my husband and kids.
I may not like the old part, but I love the time that I spend to get there, and I will relish each year from here on out. Because each year, is another of the best of my life.
Now my friends, and I know you're out there, if Troy is planning something, don't let him do it. I still am not big on parties.
But each year, I'll celebrate myself, my life, what I've accomplished, overcome, learned and been blessed with. What more can you ask for!?
Brain Tumor Update
The "tumor" or "brain abnormality" as he likes to call it has no noticeable growth since the first MRI back in February. (8 months ago) We'll wait a year and go back for another MRI to see if it grows at all in that amount of time. If it is in fact a tumor, it's slow-growing, that means we have lots of time to decide what to do about it. I could be just bone or calcification between the two lobes of my brain which won't cause any additional problems.
The only way to know for sure what it is--is to cut in there and take it out. The doc says he wouldn't do that surgery on himself right now, with the relatively small minor problem of migraines. So we wait and watch.
He doesn't expect to see anything, anytime soon. He says if this is the worst that happens to me in my life, I'd been pretty lucky with my "worst" thing.
He did say he's seen meningioma tumors stay the same size for 10 or 20 years, and then grow, but if that happens, we're watching it, and we'll take care of it when the time comes.
He says if we want to have another baby, he certainly wouldn't base the decision on this. We asked because hormone levels can cause meningiomas to grow more quickly. But, he says even if mine doubled in size, it would still be small enough for him to "take care of it." (No we haven't decided to try for #3. But we're considering that, or the "snip snip" for Troy in the next year. So you gotta ask!)
He also says he didn't see the "lacunar infarct" which is the indication that I might have had a mini stroke. That showed up supposedly on the first MRI in February. His take is that it was just a blip, and I likely didn't suffer stroke. He can't say 100%, but you get the picture. I'm going to call my neurologist to make sure he didn't notice anything either, just to be sure before I go back on the pill.
Perhaps the best news, he says I am NOT I repeat NOT diagnosed with a brain tumor. "He's evaluating a brain abnormality, which showed up on MRI. But he cannot diagnose it at this time." That's a big deal for health or life insurance! It means we can get more life insurance and I might also be able to get my own health insurance, without relying on a group policy. That gives us some options to meet the needs of our growing family.
All in all a great day! Thanks for all your thoughts, prayers, and kind words these last few months. We feel good about this, and we're so happy to stop worrying for awhile. If something changes, I'll let you all know, but barring any major changes, it should be year before any new news on this front! YEAAAH!
Tuesday, October 7, 2008
The Stairmaster
He insists on sliding that thing open at least 20 times a day and making a break for it. I can't even count how many times I chased him up those steps yesterday!!!
Ella has been assigned as the prison guard. If I'm in the kitchen or bathroom or doing laundry, she's the lookout. "Uh OH! Mommy, he's on the stairs! He's on the stairs again! Mommy, he's opening the gate!"
I think I've basically set her up for a lifetime of tattling, but I don't have the eyes in the back of my head thing perfected just yet.
Ballerina Girl
She's so musical and dances around here with daddy and mommy and "Dancing with the Stars." I just thought she'd really enjoy it, plus I wanted her to meet some new friends, and I hope that exposing her to a new situation will help make her more self-confident.
Dance school #1
We tried one dance school near our home, but I was not happy with the security and class size. She was in a class of 21 girls the first night, by week two it was down to 14, but they didn't know where she was when the let the mommies back in the room and that freaked me out. Granted, she was only in the bathroom, but no one knew, and it took them 3 minutes to find her. Made me wonder if she'd been part of the class at all.
Dance school #2
So now, we've switched to another dance school, where her friend Mary (another former childcare kid from Laura's house) takes classes. Mary is a year older than Ella, but she's taking her class as well as Ella's class, because she wants to dance more than once a week. So, it's working really well, she loves the class, and she loves the tap shoes, notice the day she got them, she's tapping on my fireplace!
Big Girl Preschool
Regardless, these two girls really look forward to seeing one another those 3 afternoons a week, they hug in the parking lot, they hold hands, they're buddies, and it warms my heart. They've already started making new friends in the class, and they'll shout to their new pals at pickup as we head home. It's so much fun to peek in the window and watch them playing or working and just having so much fun! I can't believe this is our little girl, so grown-up, already.
Catching up! again!
Ella started preschool, and dance class, and I had a really busy couple of months at work, which may result in my having to return to the office. Much more on all these topics later.
We also took a few, much needed, and well-deserved days away for our 4th wedding anniversary. (We LOOOOVE Big Cedar!) and then this past Sunday, I had my follow up MRI. We don't know anything yet, but we see the neurosurgeon tomorrow. So needless to say, I have lots to update everyone on, lots of adorable photos to share, and plenty of new direction in our lives.
Please follow along in the days to come and I'll try to catch you up!
Thursday, August 21, 2008
...then there's my boy!
Ella and the eyepatch
A Fairy Happy 3rd Birthday
We had her first real party, not our friends, but hers and she wanted fairies. I think that new Tinkerbell movie comes out sometime soon and the Disney magic is already working on my girl.
But with a wave of mommy's magic wand and daddy's credit cards, we transformed this place into our own little Pixie Hollow. And 5 little girls plus Alex and Colin (our princes for the day) had a blast! We had pixie dust, magic wands, wings and even fairy fizz punch. (who knew you could still buy Pop Rocks candy!?)
It was a blast, but exhausting and loud! Troy says little girls squeal louder than any Metallica concert he can remember! You should have heard the shrill!
In the meantime, Ella's already planning for next year. Looks like I'll have to talk her out of a High School Musical party. (again!) Happy Birthday my little fairy princess! I can't believe it's been 3 years already!
Sunday, July 20, 2008
Bruised Boy
Alex is the one who got hurt, but I think mommy cried almost as much as he did. Even Ella shed a few tears. We keep hoping he'll take more than just a couple of steps, but when he tried tonight, WHAMMMMO! His little face smashed right into the coffee table.
He was right. It didn't get huge and his eye didn't swell shut, at least that's the report from when I put him to bed around 8 tonight. We'll see how he looks tomorrow. Regardless, the boy has his first "shiner" and he and Daddy are quite proud of the badge of honor he'll be wearing for the next several days.
Friday, July 11, 2008
The Screamer and the Road Trip
I think back just a few weeks to when I was in the hospital and we had to leave them with Kimmie and Gavin. He did great! Kim was able to put him in the pack-n-play, he hung out with the girls during the day, he ate and slept and was pleasant for the two days we were unavailable.
That all changed last Thursday. I dropped the kids at Laura's house so I could attend a lunch with my department and then get things packed up and ready for our trip to Minnesota. Alex did have an ear infection, but he'd been on antibiotic since Monday, the fever was gone, he was sleeping fine, etc... I even got in his quick morning nap before I dropped them off. Laura didn't want him too rested, so he'd be sure to sleep that afternoon. He started crying when I walked out the door at 11:15 and he didn't stop for at least an hour.
Next challenge the road trip. Troy wanted to drive at night. Leaving around 7p.m. would put us in Minneapolis around 1-2 a.m. We had the DVD players hooked up in the car, put the kids in their jammies, and hit the road. Problem #1 it's still daylight and they're still awake. After 3 DVD's, we finally shut things down hoping they'd nod off. Alex was past that point and hadn't had medicine in 3+ hours so we stopped at an exit ramp, in pitch darkness and dug out Motrin to help him out. He was asleep within 20 minutes. Ella didn't sleep until after 11:30p.m. Both kids woke up when we got there, both cried and whined as we all attempted to sleep in the same room, that first night was a nightmare and the first day there wasn't much better. When we went to be Friday night and struggled to get him to sleep, we considered going home the next day, earlier than expected.
He was out of his element, I think his ear must have still hurt, he may have had teething issues, it was a trifecta of awfulness! He finally came around the last day and we had a better trip home. Two strikes, I should have known the worst was yet to come.
Mommy had a staff meeting Wednesday morning. I dropped the kids at Laura's just after 8 and headed for the office. They go to Laura's once every couple of weeks, so this is certainly nothing new. When I called Laura around 11:30 to check on things and let her know the meeting was running a little late, she sounded frazzled and frustrated. Alex had cried when I walked out the door, but that usually never lasted for more than a few seconds, and I had chalked last week up to the ear infection. But this time, he wouldn't quit. He didn't take a morning nap, he was still crying after lunch and after she put him down for the afternoon nap. She even put him in the same room with Ella in hopes of calming him a bit. No better. I heard him screaming when I hit the door and I felt horrible.
He loves me and I know he's used to being at home with me everyday, but I do leave them with sitters on a regular basis and he's always done just fine with that. He's not as adjusted as Ella, but she went to Laura's every day for the first 2 years of her life, so that makes sense.
Since Wednesday, he hasn't had a good night of sleep, he's fussy and not eating well and generally crabby, plus he's developed a runny nose. Maybe I can blame it on a cold, maybe we've ruined him in some way, I don't know, but my great kid has suddenly become the problem child who nobody wants around. Except me of course. Even when he's complete nightmare, he's my little man and I love him to pieces. I just hope I can figure out how to make him that happy go lucky boy again so others can see what they're missing.
Tuesday, July 1, 2008
39 and holding
We talked our husbands, our kids, our health, our fears and hopes, we talked about finding time alone to refresh and renew and remain the women we've become. We talked about what would happen if one of us wasn't around anymore and we talked about how we love and rely on one another. It was a great couple of days to re-connect and just have fun with my friend.
It's funny how we talked about death. Not just because of my tumor, but because we've grown up and and we're growing older. It's a part of our lives now. Mortality is still scary at any age!
Most importantly, we shopped, we ate, we drank adult beverages, and we had so much fun! I hope our next 39 years will be full of birthday celebrations together. Maybe we can do the Oprah show for our 40th? or 50th or 60th? If we make it to 70, I say, let's hit Paris again. Our kids should be grown by then!
We're still here... sometimes
Alex has cut his one year molars and almost has the "stomach and eye" teeth in as well. That means less crabbiness for all of us. He's expanding his vocabulary on a daily basis. This week, his favorite is "DOORA." He still struggles with Dada, but he's got that girlfriend's name on the tip of his tongue. He's also climbing and crawling and causing more trouble than we ever knew possible. But with that precious little grin, we're learning to pick up the pieces and ignore the bruises as this "rough and tumble" boy learns his way around.
Ella finally tackled potty training like a pro. I mentioned that I called her school to check on when classes started, etc... and they told me that "all the boys and girls at preschool wear big kid pants. They don't poopy or pee-pee in their pants and they don't wear diapers anymore." That was a suggestion from a school and it worked! She stripped down right there in the kitchen and said "I'm a big girl too! I no wear diapers anymore." and she hasn't. We had a few "accidents" while mommy was in the hospital and then out of town on business. (more on those adventures later) but in the last 2 weeks, she's worn her big girl panties all day long, she's started going on her own without being prompted, she only wears 2 diapers a day for nap and bedtime. It's been a long-time coming, but we couldn't be happier that it's finally happened!
I was in the hospital for a couple of days last month. Remember that whole "you're not having a heart attack" episode? Well, it happened again only this time, they found out why. I have a faster heart rate than I should. It's been that way since I had rheumatic fever in college. (let that be a lesson to never think strep throat can just go away on its own because you're a fun-loving college student!) Anyway, they did a whole battery of tests on my heart, blood and brain, which all came back great! So all they've done is put me on a beta blocker to slow down my heart rate and they say that will take care of things. Scary at the time, but now we know how many things are going well within this body, so that's a relief. We also got another look at the meningioma (brain tumor) and we're waiting to hear the measurements on whether it grew in the last 3 months. My next MRI isn't scheduled until October, so this was just a bonus while they checked other things during that hospital stay.
We're heading off for Minneapolis this weekend to celebrate the fourth with our friends Dane, Dena, Deuce & Dutch! It's sure to be a long car trip for the kids but we've stocked up on snacks, movies, and the potty seat! We're looking forward to a great time!
Monday, June 9, 2008
Caged
The Power of Peer Pressure
Thursday, May 22, 2008
Tanning for the Ages
It all changed three years ago for Kimmie and for me too. Who knew a mole that got bigger during pregnancy and didn't get smaller, could change our lives so much? She had skin cancer and our young, irresponsible tanning days were over.
I haven't had a tan since. No sunbathing, no tanning beds. I'm a Nazi with my kids and the sunscreen. I wear sunscreen in my moisturizer every day. So today was special.
We tanned together again, for the first time in years. But this time around, our tanning has grown up a bit. We went together, watched one anothers' kids, and we took turns. Each of us, put on a shower cap, stepped into a booth, and let a machine spray on our first tans of the summer. It's different, but I loved it. I loved that Kimmie and I were able to do it together, that even though she has those nerve-wracking 6 month check-ups, she's cancer free.
If I could go back, I'd have taken better care of my skin, spent less time in the sun, worn more sunscreen, etc... The one thing I wouldn't change is Kimmie. She's crazy and silly and caring and I'm so lucky to have her as my friend.
Thursday, May 15, 2008
It works
It pains me to think she was lonely. But I'm glad we held out and didn't wind up having to stay with her every night until she fell asleep. I can't tell you how many fellow parents have warned us not to start a habit we can't stop!
The only drawback to this, the dogs usually wake up when Troy jumps in the shower or when Alex cries out, so Ella is waking up at that time as well, and it's a little earlier than usual. It's fine for me, since I'm usually awake anyway, but she's a little more tired and crabby in the morning.
Still, I'll take the good sleep we're getting versus a little crankiness anytime!
Saturday, May 10, 2008
Could it be?
Ella doesn't like going to bed at night. It's been a change over the past year or so from baby to toddler and it's been tough to adapt for all of us. We've tried following the suggestions to keep her in her room, not bring her to bed with us, and to let her soothe herself to sleep with a regular nighttime routine. For you regular readers, it's no surprise, what we've received in return are some sleepless nights with HOURS of screaming and crying from the parents, as well as the child.
It's excruciating to hear your child cry out for you and not immediately answer that call. I can only do it, because I hope I'm training her to be self sufficient, and able to sleep on her own. But it's the hardest thing I've ever done in my life and I hate every single second of it. It literally reduces me to tears, sitting there, listening to her scream, and waiting for that clock to tick off the interval until I can go in again, even for just a few seconds.
She's been asking the dogs to come in and snuggle with her at bedtime, while we read stories, etc... they usually do this anyway, but just this week, she asked me to let Doodle stay while she napped in the afternoon. For those of you who haven't met our dogs, they're not small. Daisy (or Doodle Doo as we usually call her) is an 80 pound yellow lab/ golden retriever mix. Lola is a 45 pound husky/ shepherd mix. They're wonderful, protective, sweet girls and they love these babies to death. But they're also very active. They run, play, and jump at almost every creak or crack that might be heard. They normally sleep in our bedroom, on dog beds at the foot of our bed. It's taken Troy some real patience to adapt to this, but he's learned to ignore their scratching, dreaming, and snorting throughout the night. Getting them to lie still so a little girl can sleep is a whole new ballgame.
I tried it Friday afternoon, when Ella asked, and they just wouldn't go for it. First of all, Daisy was in there alone. Lola wanted to eat, so Daisy just whined at the door for 30 minutes until I let her out. Of course, Ella was heartbroken. I had to convince her she hadn't done anything wrong, this was just something we'd have to work on, to "teach" the doggies how to stay in her room. We'd ask Daddy for help this weekend.
So I mentioned it to Troy and we decided to give it a whirl. We tried this afternoon, and again, after about 30 minutes, they wanted out, so we opened the door and broke Ella's heart again. I explained again, that we were "teaching" them, and it's hard to learn something new, so we'd try again tonight.
Bedtime came, she asked for them and even closed the door when she went to potty and brush her teeth, so they wouldn't get away. We left them and Troy even coaxed them up onto her bed for snuggling. They didn't stay up there long. We heard her several times calling them, calming them down and getting settled herself. But they all got quiet, within about 30 minutes. A couple of hours later when Troy went to get the dogs for a bathroom break, they were waiting at the door, but Ella was sound asleep!!! Yippee!
Here's my theory and no, I'm not an expert, just a mom who's thought about this over many sleepless, scream-filled nights: Ella is incredibly social. (can't imagine where she gets that) Most nights when she doesn't want to go to sleep or doesn't want to stay in her room alone, she simply wants someone to talk to and play with. She will wind herself down, but she hates doing it alone. If I'd stay with her, eventually she'd go to sleep, but she'd drive me nuts first! I try to close my eyes, but she'll poke them, pretend she's a princess with a "magic kiss" to wake me up, etc... She just loves the companionship. Maybe those dogs are our answer. As long as they're in the room with her, she's not alone. I hate to think she's lonely in there. If the dogs can give her that comfort to find peaceful sleep at night, I'd know there was reason for re-seeding our backyard each year and spending $40 a month on dog food for sensitive stomachs.
They are her best friends, especially Doodle. I don't know why we didn't think about this sooner. I guess I worried that they'd all 3 keep one another awake. I did tell her tonight, that if the dogs weren't resting, the best thing to do, was to pretend to be asleep. I said, " If they think you're up playing, they'll want to play with you. If you're sleeping, they'll want to snuggle and sleep too." Who knows, maybe it worked, maybe it's a fluke?.
No if we can get them to go back in there, and spend the night so she'll have that comfort when/ if she wakes up, we're in business. I won't hold my breath, but what a Mother's Day gift that would be!
Wednesday, May 7, 2008
Bippity Boppity bothered...
Monday, May 5, 2008
Cinco de Alex (First Edition)
All my love,
Monday, April 28, 2008
Bye, Bye, Baby Boy
Friday, April 25, 2008
The Waiting Game (we lose)
With Alex, almost 1 year old, and Ella, 2 and a half, that's easier said than done. I plan in lots of pad time. Extra 15 minutes here for a snack. extra 10 there for diaper changes and nose wiping. I try to cover all my bases.
Alex will turn one on May 5, and I wanted photos of him to mark the end of this first year. I also want to send them to friends, family and the grandmas and great-grandma for Mother's Day. So I scheduled an appointment last Sunday morning. This is MAJOR national photo chain. They have great prices, they take good photos, it's not too expensive. We've had relatively good luck with them in the past. Only once did we have to wait a little longer than expected. I thought scheduling when many families were still at church would be ideal. We got Alex a morning nap, had a quick snack and few drinks of milk, brought the clothes with us, so no one would get messy or wrinkled on the way, and headed out.
Perfect timing, we arrived just 5-10 minutes early. Just enough time to get everyone dressed, coiffed, and picture perfect. But wait, we're running a few minutes behind, it will be about 20 minutes. That's okay, 20 minutes is in the pad time. They shouldn't be starving or overly tired. There are blocks and other kids to play with, etc...
That 20 minutes turned into an hour and half. 90 minutes late! Before we even started taking photos. By the time we finished nearly 2 hours later than our scheduled appointment time, Alex was screaming, Ella was hungry too, and Troy was about to let it rip. They left, ,headed for the nearest McDonald's to get lunch, some milk for the boy, and escape the craziness of that lobby.
I spent 20 minutes picking the photos we wanted and really, bought more than I planned to, just to get out of there before I lost my mind. I think that's the catch. They book families 15 minutes apart in an effort to drive you nuts, so you'll just buy anything to escape!!!
We did get some decent photos. Not our best, but enough to satisfy my needs for the first birthday milestone. Next time, I'm using my friend Adam and his wife. They have small photography business that comes to you, works with your schedule, etc... and they just charge by the prints you want. Check them out at http://www.arephotography.com/.
I'll post a sample of what we left the national chain with. These are just the proofs which they gave us on a CD, after we spent half our life savings. Not making that mistake again.
My little fashionista
While Troy's away...
Actually I was supposed to have a bit of a girls' weekend as well. My BFF Kristi was flying in from Dallas to shop and visit with me and the kids. But she's a momma too, and when you've got this many germs in the house, she's afraid she'd take the affliction back to her own family. Who can blame her. I wouldn't want to be here this weekend either, if I had a choice.
Luckily, my parents answered the desperate call for help and came up to help me manage the kids. We're feeling a little better today, but the kids are cranky and not up for doing much. So, it's going to be a long weekend around this house.
When daddy gets home Sunday, I'm outta here! Shopping and prep for the big birthday celebration is in order, and I plan to do it by myself. I told Troy I"m already planning my next girls' weekend. Details to come, but it will involve a spa, a massage, and no one under the age of 30!
Maybe the kids will feel well enough that I can sneak out tomorrow during naps and make a few quick purchases. I planned to spend money while he was gone! Can't miss that opportunity!
Tuesday, April 15, 2008
Watch what you say...
She learned a couple of new words this afternoon when I dropped a stack of color books and stickers and markers, etc... off the top of a pair of serving bowls. (Don't ask why we keep them there. It's out of reach, out of sight in a cabinet, and well, precariously perched where something is bound to fall!)
The point of this post... Ella hears it and repeats. It doesn't matter what it is, and today it wasn't the sort of language I want my child to use or to use myself.
Troy happened to be on the phone with me at the time and got a good chuckle out of hearing his little angel say those two words like she was saying "peanut butter" or something as common. Something tells me he won't be laughing if she repeats them to her Sunday School teacher?! UGH!
Friday, April 11, 2008
It's bone"ish"
We saw neurosurgeron #2 again today. He saw the same thing we did. The mass is there on CT scan as well as the MRI, so here's what it means. It's bone or some sort of calcification. That's why it showed up on MRI and on the CT scan, just like an xray. This is what raised the initial questions. Most meningiomas will only show up on MRI and then, only when they inject die to give it contrast. Now we know that this mass contains bone-like structure. That's something, but it doesn't get us a definitive answer.
It could be a bone abnormality which has been like that my whole life. If that's the case it won't grow. I'm an adult so my bones are pretty much done getting bigger, we can monitor and see if the size increases. We know it has not grown since the MRI two months ago, so he suggests we wait 6 months and have another MRI to evaluate. If nothing changes, we wait another 6 months and do it again. It could never change, and if that's the case, we have nothing to worry about and nothing needs to be done.
It could be a meningioma, which was the original diagnosis. Those are really slow growing tumors and sometimes they calcify or ossify, which basically means they turn partly to bone. If that's the case, it will, at some point, grow. But it could be years before it's noticeable. If and when we see ANY growth, they'll know it's not a bone and at that point, radiosurgery can stop it from growing any further.
I asked if we're taking any risks by doing nothing. He said the only way to know for sure what it is, it to cut it out, and he said "I wouldn't let you cut into my head at this point. I'd hold off until we know there's a reason to get it out." He also says while her can never say "never" he is 99% sure that this is not anything worse than a benign tumor. He says he's never seen anything malignant turn to bone, those types of cells just grown and replicate too fast for that.
So for now, we watch and wait, and if anything change in my symptoms, they'll do an MRI sooner. Otherwise, we'll schedule an MRI in 6 months and learn more then. We hope. Thanks for all your thoughts, well wishes, and prayers. We feel like we're out of the woods for now, regardless of what it is, it seems it's nothing to panic about, and nothing that will require anything more than the radiosurgery. That's a huge relief for this busy family!
Thursday, April 10, 2008
CT scan follow up
They sent the films with me on CD so Troy and I have already cheated and taken a look. There's a bright spot of contrast in the same location where the contrast shows up on MRI. We have no clue what that means, but hope to find that out tomorrow.
I'll try to blog an update if we find out any news at all.
In His Word(s)...
Anyway, back to the point of my post. Alex has always been noisy, Much more so than his sister ever was. He coos and goos and started really babbling a month or two ago. I think the kid even purrs when he's happy. He has this weird little gurgle that he uses when he's smiling at me while I change his clothes and tickle his little tummy or nuzzle his neck. It's literally the sound of happiness! At least it was until today, when I finally heard my baby boy say a word! His first!
I read on one of those stupid baby website newsletters for "My 11 month old this week" that he should be babbling and saying words at this point. We have the babble down, but no words. Not Mama or Da or anything. Ella's first word was DaDa (which I assume was Daddy or Doggie), so I had high hopes for my boy. I've been working with him on MaMa and I could swear I hear him scream it some of the time when he's awake and desperate to be lifted out of the crib, but he makes lots of sounds when he's mad, so he could just be swearing in baby talk and I'd never know.
Today was different. He said it and recognized exactly what he was talking about. He said it again and again and again, until he got what he wanted. It wasn't DaDa, or Baba and no, it wasn't MaMa either, but that's okay. Alex's first word was Ella. He said it first and it sounded more like "Eh-yah." I heard it and turned to see that she'd walked out of the room where they were playing together. I asked if he wanted Ella to come back and he said it again. "Eh-yah." Then he said it 3 or 4 times right in a row, and you should have seen how hard he worked to move his mouth and lips into different shapes, trying to make just the right sound. It was precious!
Ella, after all is one of my favorite words in the whole world. I can't think of a better choice for the first word to come out of her little brother's mouth. (Ella's quite proud too! She thinks it's pretty special that he chose her name out of all the words he could have used.)
Wednesday, April 2, 2008
Baby Robinson #3
But I don't want Troy to "get fixed" because I haven't signed off on the possibility of having a third baby. (Plus, I insist if the brain tumor kills me he'll have to remarry and his 2nd wife may want a kid. He HATES it when I say that, so I had to throw it in. I've even picked out a few gals who I think would be good options for him, now is that a generous wife or what! Seriously, I'm just looking out for who I'd want around my kids on a full-time basis, but this is another post completely.)
Anyway, back to babies... something lately just has the urge stirring. Maybe it's that Alex is about to turn 1. Maybe it's that he no longer wants to sit quietly on my lap and snuggle, he'd rather race around after his sister and fall off of things to inflict more bruising.
He did fall asleep in the car a few nights ago and when I lifted him out of the car seat, he was still out cold. This is rare, so I just sat and enjoyed. He was snuggled up with his head and hand on my chest. I could feel his breath going in and coming out, it was precious and magical! I just couldn't imagine not having a baby nuzzle in like that again!
I told Troy I think I want a third, and he told me he thinks I'm crazy. For now, we can't get pregnant, because if I need brain surgery of any kind, the neurosurgeon wouldn't want me pregnant. But all 4 doctors (5 if you count my OB) still tell us it's an option in spite of the tumor and treatments.
So if and when the time comes, we'll decide if we're up for the family of 5, or not. I'm perfectly content with the family we have. All I ever wanted was to be a Momma, and I got that with my precious Ella. I've said the rest of my life is just gravy, so I guess Alex is the best little gravy I've ever snuggled up and giggled with.
What does that make a possible baby #3? Perhaps the perfect dessert, or a glass of Grappa if you're Troy. Either way, I'm not ready for the waiter to bring us the check!
Neurosurgeon #2, he's a keeper
We left again, with no more definitive answers, but more information on why there are so many questions. Let's start at the beginning:
- what is it? he doesn't know, and here's why: He thinks it is probably a meningioma, which was the initial diagnosis. (by the way he says there is only 1, the second blip only shows up on 1 slide, so he doesn't think it's actually anything to note) But this doesn't show up like typical meningioma. When you get an MRI they take pictures of slices of your brain. They do it from top to bottom and front to back and side to side. Then they inject you with a contrast dye and take the same pictures again. Meningiomas typically only show up on the second set of pictures, after you get the dye to light it up. Mine shows up on both sets of pictures, which leads them to view the mass as something else, possibly containing bone, or marrow, or blood. It could be a bone tumor, it could be a fatty tumor, it could be many things, so they want to rule some of those out BEFORE treating it as a meningioma. That's good news. We like knowing that they want to be sure of what it is, before they zap it with a laser or cut it out. Good call!
- what do we do about it? he doesn't know, and here's why: If it's bone or another type of tumor, we have to treat it differently. If it is a meningioma, they're slow growing, rarely cancerous and still eligible for both options radiosurgery, or the traditional crainiotomy (brain surgery). But we can't decide what to do, until we know more about what it is.
- how do we find out, and when will we know? we do more scans and hopefully in 2-3 months, we'll have a more definitive answer. They're scheduling a CAT scan right away. That will show him if the mass is bone, and then he can work to further determine if it's a bone tumor, abnormality, or whatever, and we'll move in that direction. In 2-3 months, he suggests we do another MRI, which will help determine the growth rate. If it's slow growing, like most meningiomas, we can then determine what to do and when to do it.
- do we need to remove it? yes, most likely, we do, the question is when. Meningiomas are slow growing, but I'm young and I will likely have to deal with it at some point before I die. If we discovered this when I was 92 years old, he'd say ignore it, you won't be around long enough for it to matter. It's NOT causing problems now, so it doesn't need to be removed immediately. If it's a slow-growing, meningioma, then it could be 20 years before it's large enough to put enough pressure on any part of my brain to notice a problem. So yes, in theory we could wait an not have to deal with it for years to come. But, I'd be older then and you always recover better from surgery when you're young, plus, when it's smaller you have more options such as the radio surgery. Once it's bigger, your only option is full blown brain surgery.
- what are the surgery options and which is best? the second half of that question is tough to answer, but we'll know more about what's best when we know what it is. There are basically two types of procedures for us to consider a crainiotomy (knife into scalp, saw through scull, cut out tumor tissue and close head back up) or radiosurgery (targeted radiation rays blasted to exact point in my brain to freeze tumor and stop future growth.)
- what are the pros and cons of crainiotomy? pros, you remove the tumor and any questionable surrounding tissue, you do pathology on the tumor to determine exactly what it is and if it could cause future problems elsewhere in your body. Cons, this is brain surgery. You spend 2 days in intensive care, 4-5 days in the hospital, minimum of 2 months before you get energy and ability level back, plus setbacks after that. Oh, and they have to shave some of your hair off.
- what are the pros and cons of radiosurgery? pros, no cutting, no shaving, no scar, you don't even get undressed for the surgery, you leave the hospital the same day, you can drive yourself home (but they don't suggest that) Cons, the tumor stays in there, it just stays the size it is and the radiation stops it from growing any larger which would cause the future problems, you don't get to do pathology, so you don't know what it is, or whether it could cause future problems down the road. (upside of that is, I'll have to get an MRI and CT scan at least once a year for the rest of my life, so if something did turn up, we'd know quickly.)
- what next? We schedule a CT scan in the next week or so. That will tell him immediately if it's bone which leads in a new direction, if it's not, we'll continue to assume it's probably a meningioma. We schedule a follow up MRI in 2-3 months and see if it's grown, etc.. and we come back to see him. (unless of course something important is revealed in the CT scan, then he'd want us back immediately for a completely different set of options, but that's not what he's expecting.)
- are we wasting precious time? no, he doesn't see anything to indicate this is fast growing and even at 2.7 centimeters, he says I'm a long way from the radiosurgery cut off points. He say that rather than a round ball, my tumor is long and skinny, like a comb. That makes it easier to target all the outside of the tumor, so it can be 5-6cm long and still be okay for radiosugery.
- what about the possible mini-stroke? he doesn't think that's the case. he thinks the spot on my brain is from the migraine drug reaction, when I thought I was having a heart attack and experienced the numb, tight, weak feeling on my left side. He thinks that did kill some brain cells, which is what showed up, but that's deep in the center of my brain. He says the risk of stroke from birth control pills is in the large blood vessels of the brain, and he doesn't see ANY problem there. His advice was to weigh our options, if the ovarian cysts are also a threat to my lifestyle, he says to go back on hormone and control the cysts, but preferably just progesterone and not estrogen. We're waiting that out for a month or so to see how it goes.
Okay, I think that covers the basics, so now you're as up to date as we are. More to come after the CT scan, if it shows anything or after our follow up in 2-3 months. Until then, keep the good thoughts and prayers coming!
Herpes! or Crazy Lady with the virus
Friday: fever or 104, we learn we've been exposed to mono, she's complaining that her teeth hurt, we go back to the doctor, they do a mono test, urine test for a bladder infection, rule it a virus again and send us on our way.
Saturday, March 29, 2008
Ella's Excellent Adventure
Ella decided earlier this week that she needed to go see "the castle." She says this every time she watches "Enchanted", or sees a Disney commercial, or the opening graphics of ANY Disney movie, because yes they show a castle. So Troy and I explained to her that there was a real "Cinderella castle" and someday, maybe we'd go see it. (Mistake #1)
Then she saw the Orlando tourism commercial with the castle and beaches, etc... and decided "Ella needs to go beach." We explained that she's actually been to the beach, when we went to Florida for Troy's brother Nick's funeral. We even pulled out the picture and showed her playing in the sand, eating sand, picking up shells, wading in the water, etc... (Mistake #2)
She decided she wanted to go back to the beach Wednesday night, and she wanted to get there now. It took us awhile to explain that the beach is a long way from Ella's house. We can't get there in just one day, it's far away like Grandma and Grandpa Robinson's house in Florida, and we have to fly in an airplane to get there. (Mistake #3)
We've tried to explain that we need to buy tickets, but Ella insists the Hello Kitty paper she has will work just as well. We've told her that we need to make plans to take a trip like this. She's not buying it.
Our original plan has been to stick close to home for a few years, until we can all travel a little more easily, and Alex can walk and enjoy the activities too. But life is short, and my health scare has us talking about things we'd like to do, while we have a chance. There are pluses and minuses either way. So we'll consider and reconsider. In the meantime, Ella may forget about this and move onto something new. Maybe she'll want to visit the North Pole next week?!
Thursday, March 27, 2008
Who knows?
What information we can find leads us to think that his could mean the Gamma Knife would NOT be an option. I'd have to have an actual craniotomy if surgery is needed. That's scary. But I'm not panicking until we learn more. Much more to come after our appointment on April 2nd.
Also learned that the NIH has a 2nd opinion program for brain tumors, which is FREE, thanks to Federal Government cancer funding, and the NeuroRadiology Department at Johns Hopkins offers second opinions. I'm still waiting to hear a price range on that. At least we could get a few top in the field folks to weigh in on all this, and help us decide who knows what they're talking about. Before we let anyone shave my head and cut into my brain! Yikes! More to come...
Monday, March 24, 2008
It's NOT a tumor...
I got a call about an hour after the conference today. The coordinator says they don't think either of the two areas of contrast which show up on my MRI are meningiomas. In fact, she says those were the first words out of the neuro-radiologist's mouth. He says they're not meningiomas, they're "bone bumps." She said the doctor next week can explain much more thoroughly, but that they can see bone marrow in the growth, so they determined they are abnormalities in the skull and not invasive tissue.
I think that's good news. Because to me, non-invasive means they won't expand and compress brain tissue, which is the main concern of meningioma. I might not need surgery or any intervention whatsoever.
BUT, there's always that magical, mystical word to throw into the equation. Why is this the first time we've heard this:? Why didn't the first radiologist who read the MRI and provided a report see the bone marrow? Why didn't either of the 2 neurologists that we've seen or the 1st neurosurgeon indicate this? My thought is that most doctors don't really understand the MRI films themselves. They just look at what the radiologist puts in the report and it's "okay, I see that white blob on screen B6, makes sense to me."
I'm hopeful that this neuro-radiologist is a specialist, trained to look at films of the brain and that because he viewed my MRI films in this conference setting with a handful of other doctors, they were able to discuss and concur on what they saw on my films. We plan to discuss this at length with the 2nd neurosurgeon at the appointment next week. We're hoping we can convince him to order a second MRI immediately, and let another neuro-radiologist take a look to get us a concurring opinion. That would be a first! Doctors with the same ideas, thoughts and opinions on my brain!
Until then, we're just keeping our minds open and hoping for the best information.
Sunday, March 23, 2008
Lip gloss reprieve
He says "on principal, it's not my fault" but his experience as my husband got the best of him.
He realized he could stand on his "principal" or avoid the nagging for weeks maybe months to come.
He opted for the latter, and my tube of "RaZZ my Berry" arrived Friday. Love it even more the second time around.
And for the record, I was sedated. I still think it was his fault. But you're forgiven baby!
A little help from my friends, and my job.
I know I've blogged about this before, but it's never been more important than it is to me now. Since we learned of my brain tumors, I can't even express how grateful I am for every single moment with my children. Even when they're screaming or snotty, or smearing blackberries all over my kitchen. I treasure my time with them.
We're over the initial shock of the "brain tumors" diagnosis. I've started to come to grips with the fact I'm not going to die tomorrow, unless I'm hit by a bus or something. The tumors are not likely to kill me. But, there is always that underlying thought of my mortality. It truly makes me realize that leaving TV is never going to be a decision I regret. Having this quality time with my children, being here for all the "firsts" is irreplaceable. So thanks #1 is for the flexibility my job allows to spend the time I need with my family.
Thanks #2 is for the fact that I work with an amazing staff of professionals. I can literally call up a co-worker and ask "Who do you know at Mayo? I need to see a neurosurgeon." and in minutes I have names of the very best. That's reassuring when you're searching for answers to help make one of the biggest decisions of your life! Lorrie never even skipped a beat. She was on the phone, sending emails and finding what I needed to make my life a little more directional at that point. Thank goodness for her calm, level-headedness when I so desperately needed to know I could find help! She's a brilliant mind, a great resources and a kind and caring friend when I'm at my most vulnerable. I'm so grateful for that.
Thanks #3 is for all the friends I've made through my new job. Tara is my working mommy counterpart and so much more. We have toddlers (Colin and Ella) and babies (Delaney and Alex who were born just 6 days apart) plus working husbands, etc... so we're kindred spirits. We've both faced the challenges of balancing work and family and it's only gotten crazier since we added baby #2 to each family. I can call her anytime (and vice versa) to ask about puking, or a rash, or "listen to this cough" or "can we got out for a drink with no kids tonight?!" She's so supportive of me both in the workplace and on a personal level. So, in case I haven't told you recently my friend, I'm so grateful for knowing that you've got my back.
Those friends are not only the people I work with, but the families I serve. Karen was the first person I asked about brain surgery. She explained what it involves, how you recover, the head shaving, the scar, covering it all with hairbands, scarves, etc... I needed some frank answers and she had them.
And then there's Julia, the mommy who can get anything done! She doesn't take "NO" for an answer when it comes to the health and care of her two children who suffer from a life-threatening disease. I should have known she'd have more information about working around my insurance than I do. When we found out I couldn't go to Mayo, unless we pay out of pocket, Julia immediately had more information. Now I know how to price shop, what to tell them about the fact that I'm paying myself, etc... Who knew you could negotiate for cheaper medical care? But apparently, that' s how it works when you want 2nd, 3rd or 4th opinions. I can't thank you enough for helping me to navigate the health care system.
I just know a little more every day how this job change and choice must have been part of God's plan for me. I would never have met any of these wonderful people, made these amazing connections, or spent this special time with my family if I hadn't asked for God's guidance, listened to his will, and followed his plan. That's all I'm saying... you fill in the blanks for yourself. They could be life-altering for you too!