SURPRISE!!!

Max is off the ventilator and on a CPAP mask!!!


The doctor made a decision this morning and said SURPRISE when I hit the door. So far he's doing really well. The best part for me is hearing his voice again. It's been WEEKS since we heard him cry. Music to my ears! His feedings via tube continue and he did lose a little weight yesterday, finally.

Not only has Max moved to the CPAP today, he graduated to a new big boy bed (open crib) and he is wearing clothing for the first time. (just a long sleeve t-shirt because of his IV port, ostomy bag, etc... but it's something) He just spent 2 hours snuggling Mommy and seemed under-whelmed by all the hoopla.

Oh! He also graduated to the next size of binkie... first it was white with a ventilator clip, then purple and now orange. We'll have a rainbow of sizes to keep for his time capsule.