Max has multiple things happening today.
1st was his follow up brain scan. (head ultrasound through the soft spot) We should know the results of that later today.
2nd is his barium enema. He just left me for that. They loaded him into the portable isolette with ventilator on board, as well as all his IV fluids and nutrition. He goes down to radiology for this procedure along with his nurse, his respiratory therapist, and his nurse practitioner. It should take about an hour. The films will be read by the radiologist and then his surgeon. This should help the surgeon know what to expect when he goes in later this week. We're still assuming surgery will be Friday, but not confirmed time or day yet.
3rd will be his new PICC line. He lost the old PICC line last night. This is a long-term, central IV, which goes directly to his heart. Unfortunately, Max's PICC line was pulled slightly out of position, and began infiltrating his IV nutrition and lipids (fats) into his tissue. So, it had to be removed last night. They were able to get a peripheral IV line into his foot, but only after 6 attempts. He needs a central IV line for his nutrition, meds, etc... plus a secondary line for blood and anesthesia before surgery. This is why they will place another PICC line later today. The doctor will make a small incision in his inner elbow and they will insert the PICC line into his vein up to his heart for direct access. Max is sedated for this and it will take place in the NICU. This line should last through his surgery later this week. At that time, they expect the surgeon will place a Broviak (sp??) central line. This kind of IV last even longer than the PICC line. It's inserted surgically, under the skin in his groin. A plastic ring or "port" will anchor the line under the skin and keep it in place permanently if needed. The doctor tells me some kids even go to kindergarten with the Broviak.
So, it's been a busy day, and it will only get busier. So far, Max is holding up well, and I'm doing okay too. Just crammed in some lunch while he's in radiology. Hoping he's back upstairs where I can hold his little head soon.
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2 comments:
What a busy day for Max and Mommy. I hope that it all goes well.
Fair warning, the Barium is creepy when it comes out. Although I don't know if you'll see that since Max is having it as a "lower GI", that diaper may get changed before they come back from radiology. Grey had a dose of the Barium for an "upper GI" and it was one disgusting diaper.
Praying all goes well!
My thoughts are still with you guys!! I am hoping for the best on Friday and hope Ella and Alex are doing well. I feel out of the loop now but feel free to text me or call if you need anything. After things settle down for you guys I will give you a call or text to say hi. I at the same time love reading the blog to know what is going on but breaks my heart at the same time. Stay strong!!
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