Thursday, March 27, 2008

Who knows?

A little further research reveals that bone tumors are sometimes referred to as "bone bumps." So we still don't know what we're dealing with at this point. Could be a tumor, or not. We probably won't find out until we talk to the doctor next week. And even then, who knows. Not a lot of answers lately, just more questions.

What information we can find leads us to think that his could mean the Gamma Knife would NOT be an option. I'd have to have an actual craniotomy if surgery is needed. That's scary. But I'm not panicking until we learn more. Much more to come after our appointment on April 2nd.

Also learned that the NIH has a 2nd opinion program for brain tumors, which is FREE, thanks to Federal Government cancer funding, and the NeuroRadiology Department at Johns Hopkins offers second opinions. I'm still waiting to hear a price range on that. At least we could get a few top in the field folks to weigh in on all this, and help us decide who knows what they're talking about. Before we let anyone shave my head and cut into my brain! Yikes! More to come...

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