Sunday, November 23, 2008

Trike training




Should she be able to pedal yet?
Ella has a Barbie trike, but I can't seem to make it go. She may be a little too short to reach the pedals. I'm wondering if she needs a different style, where she sits more on top of the pedals, instead of having them out in front?
For now, she enjoys just pushing it around the house and basement, sometimes with Alex along for the ride. I'm hoping we can have her pedaling by spring.

Saturday, November 15, 2008

Casualty of the Economy

For those of you who haven't heard I was laid off from my job on Halloween. We should probably be terrified, but actually, we're trying to take it in stride. Yes, the economy is horrible and yes, it is a rough time to be without a job, but I'm luckier than most.

I'd saved up 27 days of paid time off this year, anticipating possible brain surgery, which didn't have to happen after all. Plus they gave me a severance package, so that helps.

I do already have some exciting prospects! I'm not saying there aren't some rough times ahead, but Troy and I have been praying about this. We've been concerned about my job for several months, and really struggling with what God wanted us to do. I guess he gave us an answer. Now we're just searching for that next step.

Please keep us in your thoughts and prayers as we consider the possibilities. In the meantime, we're busy preparing for my family over Thanksgiving and Troy's family for Christmas. That should be enough to keep us busy for the next couple of months!

Wednesday, October 8, 2008

Countdown to 40...

I hate birthdays. I really do. I mean, I like getting gifts, especially the really good ones, but I hate being reminded all day that I'm a year older. Other than taking a trip away from the craziness with Troy and the kids, I really don't celebrate them anymore.

I loved them when I was young. It was a HUGE deal to have a birthday and get flowers at school. It was great having sleepover and skating parties and getting drunk when you turned 21 or getting your driver's license when you turned 16. Then I turned 29, and the thrill was gone.

Who wanted to be 30, with no husband, no kids, no house, just a dog, a cat and a morning TV job to show for myself. I decided I was done.

My parents hadn't made a big deal of birthdays. While I never gave up Nana's birthday dinners, or Kristi's phone calls on my birthday to sing the "happy birthday" song first thing that morning. But otherwise, no hooopla for me.

Maybe I'm older. (Yeah, like I could stop that from happening) Maybe I'm wiser. May it's just that considering whether you might have a brain tumor, might die, etc... really makes you think about your life. I'm actually looking forward to my birthday this year.

It's a biggie. I'm going to be 40! I never imagined this is what 40 would be like, but I wouldn't have it any other way. I have a wonderful, caring, supportive husband. I have two adorable, healthy, happy (when they're not in time-out or teething) children, a house, two dogs who shed on everything, a job, friends, family, and oh yes, another year of life.

Don't get me wrong, I hate the fine lines and I'm using every cream I can afford! I hate the "really blonde" hairs that Troy spots and I'm relying on Natural Match 7C to keep those at bay. I hate the fact that I'm larger and droopier and ache more than ever. But that's part of getting older, and getting older means I'm enjoying more of those wonderful moments with my husband and kids.

I may not like the old part, but I love the time that I spend to get there, and I will relish each year from here on out. Because each year, is another of the best of my life.

Now my friends, and I know you're out there, if Troy is planning something, don't let him do it. I still am not big on parties.

But each year, I'll celebrate myself, my life, what I've accomplished, overcome, learned and been blessed with. What more can you ask for!?

Brain Tumor Update

All positive news today at my follow-up visit to the neurosurgeon.

The "tumor" or "brain abnormality" as he likes to call it has no noticeable growth since the first MRI back in February. (8 months ago) We'll wait a year and go back for another MRI to see if it grows at all in that amount of time. If it is in fact a tumor, it's slow-growing, that means we have lots of time to decide what to do about it. I could be just bone or calcification between the two lobes of my brain which won't cause any additional problems.

The only way to know for sure what it is--is to cut in there and take it out. The doc says he wouldn't do that surgery on himself right now, with the relatively small minor problem of migraines. So we wait and watch.

He doesn't expect to see anything, anytime soon. He says if this is the worst that happens to me in my life, I'd been pretty lucky with my "worst" thing.

He did say he's seen meningioma tumors stay the same size for 10 or 20 years, and then grow, but if that happens, we're watching it, and we'll take care of it when the time comes.

He says if we want to have another baby, he certainly wouldn't base the decision on this. We asked because hormone levels can cause meningiomas to grow more quickly. But, he says even if mine doubled in size, it would still be small enough for him to "take care of it." (No we haven't decided to try for #3. But we're considering that, or the "snip snip" for Troy in the next year. So you gotta ask!)

He also says he didn't see the "lacunar infarct" which is the indication that I might have had a mini stroke. That showed up supposedly on the first MRI in February. His take is that it was just a blip, and I likely didn't suffer stroke. He can't say 100%, but you get the picture. I'm going to call my neurologist to make sure he didn't notice anything either, just to be sure before I go back on the pill.

Perhaps the best news, he says I am NOT I repeat NOT diagnosed with a brain tumor. "He's evaluating a brain abnormality, which showed up on MRI. But he cannot diagnose it at this time." That's a big deal for health or life insurance! It means we can get more life insurance and I might also be able to get my own health insurance, without relying on a group policy. That gives us some options to meet the needs of our growing family.

All in all a great day! Thanks for all your thoughts, prayers, and kind words these last few months. We feel good about this, and we're so happy to stop worrying for awhile. If something changes, I'll let you all know, but barring any major changes, it should be year before any new news on this front! YEAAAH!

Tuesday, October 7, 2008

The Stairmaster


This is my new nickname for Alex. This kid will not quit! We've never mounted a gate at the bottom of the stairs, we just slid an old one between two of the balustrades for Ella and that was enough to keep her out. Not the boy.

He insists on sliding that thing open at least 20 times a day and making a break for it. I can't even count how many times I chased him up those steps yesterday!!!

Ella has been assigned as the prison guard. If I'm in the kitchen or bathroom or doing laundry, she's the lookout. "Uh OH! Mommy, he's on the stairs! He's on the stairs again! Mommy, he's opening the gate!"

I think I've basically set her up for a lifetime of tattling, but I don't have the eyes in the back of my head thing perfected just yet.
I'm just remembering when he wasn't mobile.... aaaaah those were the days. But he is really cute now that he's running and climbing all the time! (this is not a picture of stairs I realize, he's too quick for that, but it's a cute picture of a guilty looking boy, who's about to climb onto my coat rack, again!)

Ballerina Girl

Ella's other big first this fall, has been dance class. I enrolled her in preschool combo, which is a little bit of everything. Mainly, they just put on a leotard, dance around and have fun. No special supplies, just an hour a week, no pressure.






She's so musical and dances around here with daddy and mommy and "Dancing with the Stars." I just thought she'd really enjoy it, plus I wanted her to meet some new friends, and I hope that exposing her to a new situation will help make her more self-confident.



Dance school #1

We tried one dance school near our home, but I was not happy with the security and class size. She was in a class of 21 girls the first night, by week two it was down to 14, but they didn't know where she was when the let the mommies back in the room and that freaked me out. Granted, she was only in the bathroom, but no one knew, and it took them 3 minutes to find her. Made me wonder if she'd been part of the class at all.






Dance school #2

So now, we've switched to another dance school, where her friend Mary (another former childcare kid from Laura's house) takes classes. Mary is a year older than Ella, but she's taking her class as well as Ella's class, because she wants to dance more than once a week. So, it's working really well, she loves the class, and she loves the tap shoes, notice the day she got them, she's tapping on my fireplace!

Big Girl Preschool

We've talked about it for months, contemplated changing locations (if I had to go back to work full-time) worried whether she'd be potty trained, and then the big day finally came.

Ella was headed for preschool, with her Hello Kitty backpack and her first best friend, Sophie. These two have been counting the days, and I think it was worth the wait for all of us. Sophie is my friend Kimmie's youngest little girl. Kim and I met in Springfield, back in the early days of our TV news careers. Who would have guessed that our girls would hook up for their first classroom experience.

I nearly died the night before their "meet the teacher" event, when we were laying out Ella's clothes and she asked "what will Sophie be wearing?" I had to call Kim and we all laughed out loud. I think Gavin's words were something like "and so it begins..."

Regardless, these two girls really look forward to seeing one another those 3 afternoons a week, they hug in the parking lot, they hold hands, they're buddies, and it warms my heart. They've already started making new friends in the class, and they'll shout to their new pals at pickup as we head home. It's so much fun to peek in the window and watch them playing or working and just having so much fun! I can't believe this is our little girl, so grown-up, already.

The biggest adjustment is napping, Ella loves to sleep, as I'm posting right now, she's in hour 3 of her afternoon nap. This not a preschool day. She'd adjusting, she falls asleep in the car on the drive home a lot, but the cat nap is usually enough to get her by. Alex is also nap deprived. He conks out after we drop her off and I carry him up to bed. He has about an hour and half max to sleep before I wake him up to go get her, so he's a bit shell-shocked. But they're both going to be earlier on those nights, and so far, it works.



They've already let us know the schedule will change for next year, so we'll adjust again. In the meantime, Ella loves her class, her teachers, Mrs. Craddick and Mrs. O'Donnell and all that comes with being a preschooler. Isn't she adorable!?

Catching up! again!

It seems every time we undergo a big change in our lives, I stop blogging. Not that I don't have the constant voices in my head telling me what I need to say, just that I run out of time in the day to sit down, and say in, on-line.

Ella started preschool, and dance class, and I had a really busy couple of months at work, which may result in my having to return to the office. Much more on all these topics later.

We also took a few, much needed, and well-deserved days away for our 4th wedding anniversary. (We LOOOOVE Big Cedar!) and then this past Sunday, I had my follow up MRI. We don't know anything yet, but we see the neurosurgeon tomorrow. So needless to say, I have lots to update everyone on, lots of adorable photos to share, and plenty of new direction in our lives.

Please follow along in the days to come and I'll try to catch you up!

Thursday, August 21, 2008

...then there's my boy!

I never said he was the smartest kid. But he's brilliant when it comes to finding new uses for things you might think to throw away!
Yes, it was his sister's birthday and yes, she did get a lot of loot, but in Alex's mind she missed the best of the bunch. Who can pass up a clear hatbox wrapping, when it serves as an astronaut helmet!?!
Now that's a future McGyver don't you think!

Ella and the eyepatch


Just a snap shot of what you missed in the past month. Ella had another eyelid infection. And we tried to get her to wear the eye patch to keep her from smearing around the ointment. She liked the idea of an eye band-aid. Until it kept her from seeing her books. Then the patch came right off. Oh well, the stuff childhood is made of I guess. She was cute, even with one eye!

A Fairy Happy 3rd Birthday

I know it's been a month since my last blog. Things get busy around here. Especially with the boy up on both feet much of the time these day. But more on that later. Our baby girl just turned 3 yesterday!

We had her first real party, not our friends, but hers and she wanted fairies. I think that new Tinkerbell movie comes out sometime soon and the Disney magic is already working on my girl.



But with a wave of mommy's magic wand and daddy's credit cards, we transformed this place into our own little Pixie Hollow. And 5 little girls plus Alex and Colin (our princes for the day) had a blast! We had pixie dust, magic wands, wings and even fairy fizz punch. (who knew you could still buy Pop Rocks candy!?)


It was a blast, but exhausting and loud! Troy says little girls squeal louder than any Metallica concert he can remember! You should have heard the shrill!


In the meantime, Ella's already planning for next year. Looks like I'll have to talk her out of a High School Musical party. (again!) Happy Birthday my little fairy princess! I can't believe it's been 3 years already!

Sunday, July 20, 2008

Bruised Boy



Alex is the one who got hurt, but I think mommy cried almost as much as he did. Even Ella shed a few tears. We keep hoping he'll take more than just a couple of steps, but when he tried tonight, WHAMMMMO! His little face smashed right into the coffee table.

It was immediately big and purple and looked like he had a marble shoved under his skin. He cried and cried for what seemed like forever, but he wouldn't let us hold ice on it. He's still a boy, too tough for that. I wanted to take him to the hospital to get it checked out, immediately. But Troy insisted it wasn't that bad.

He was right. It didn't get huge and his eye didn't swell shut, at least that's the report from when I put him to bed around 8 tonight. We'll see how he looks tomorrow. Regardless, the boy has his first "shiner" and he and Daddy are quite proud of the badge of honor he'll be wearing for the next several days.

Ella just wants to put a Dora Band-Aid on it!
Oh and did you notice his big boy haircut?! He's truly becoming a little man.

Friday, July 11, 2008

The Screamer and the Road Trip

You think you're doing okay, that your child is pleasant, easy-going, and likable... well think again. Alex has turned into "that" kid. I don't know why he seems to have just "flipped the switch," but he's suddenly become, clingy, whiny, and high-maintenance.

I think back just a few weeks to when I was in the hospital and we had to leave them with Kimmie and Gavin. He did great! Kim was able to put him in the pack-n-play, he hung out with the girls during the day, he ate and slept and was pleasant for the two days we were unavailable.

That all changed last Thursday. I dropped the kids at Laura's house so I could attend a lunch with my department and then get things packed up and ready for our trip to Minnesota. Alex did have an ear infection, but he'd been on antibiotic since Monday, the fever was gone, he was sleeping fine, etc... I even got in his quick morning nap before I dropped them off. Laura didn't want him too rested, so he'd be sure to sleep that afternoon. He started crying when I walked out the door at 11:15 and he didn't stop for at least an hour.

Next challenge the road trip. Troy wanted to drive at night. Leaving around 7p.m. would put us in Minneapolis around 1-2 a.m. We had the DVD players hooked up in the car, put the kids in their jammies, and hit the road. Problem #1 it's still daylight and they're still awake. After 3 DVD's, we finally shut things down hoping they'd nod off. Alex was past that point and hadn't had medicine in 3+ hours so we stopped at an exit ramp, in pitch darkness and dug out Motrin to help him out. He was asleep within 20 minutes. Ella didn't sleep until after 11:30p.m. Both kids woke up when we got there, both cried and whined as we all attempted to sleep in the same room, that first night was a nightmare and the first day there wasn't much better. When we went to be Friday night and struggled to get him to sleep, we considered going home the next day, earlier than expected.

He was out of his element, I think his ear must have still hurt, he may have had teething issues, it was a trifecta of awfulness! He finally came around the last day and we had a better trip home. Two strikes, I should have known the worst was yet to come.

Mommy had a staff meeting Wednesday morning. I dropped the kids at Laura's just after 8 and headed for the office. They go to Laura's once every couple of weeks, so this is certainly nothing new. When I called Laura around 11:30 to check on things and let her know the meeting was running a little late, she sounded frazzled and frustrated. Alex had cried when I walked out the door, but that usually never lasted for more than a few seconds, and I had chalked last week up to the ear infection. But this time, he wouldn't quit. He didn't take a morning nap, he was still crying after lunch and after she put him down for the afternoon nap. She even put him in the same room with Ella in hopes of calming him a bit. No better. I heard him screaming when I hit the door and I felt horrible.

He loves me and I know he's used to being at home with me everyday, but I do leave them with sitters on a regular basis and he's always done just fine with that. He's not as adjusted as Ella, but she went to Laura's every day for the first 2 years of her life, so that makes sense.

Since Wednesday, he hasn't had a good night of sleep, he's fussy and not eating well and generally crabby, plus he's developed a runny nose. Maybe I can blame it on a cold, maybe we've ruined him in some way, I don't know, but my great kid has suddenly become the problem child who nobody wants around. Except me of course. Even when he's complete nightmare, he's my little man and I love him to pieces. I just hope I can figure out how to make him that happy go lucky boy again so others can see what they're missing.

Tuesday, July 1, 2008

39 and holding

I flew to Dallas a couple of weekends ago for a conference through my employer. I could have flown home the same day, but my best friend's birthday was Friday, and I wanted to stick around to help celebrate. We had such a great time and it reminded me of why we've remained friends for so long.

We talked our husbands, our kids, our health, our fears and hopes, we talked about finding time alone to refresh and renew and remain the women we've become. We talked about what would happen if one of us wasn't around anymore and we talked about how we love and rely on one another. It was a great couple of days to re-connect and just have fun with my friend.

It's funny how we talked about death. Not just because of my tumor, but because we've grown up and and we're growing older. It's a part of our lives now. Mortality is still scary at any age!

Most importantly, we shopped, we ate, we drank adult beverages, and we had so much fun! I hope our next 39 years will be full of birthday celebrations together. Maybe we can do the Oprah show for our 40th? or 50th or 60th? If we make it to 70, I say, let's hit Paris again. Our kids should be grown by then!

We're still here... sometimes

I can't believe it's been almost a month that I've been away from my posts! We've been busy around here with some new obstacles and great victories as well.

Alex has cut his one year molars and almost has the "stomach and eye" teeth in as well. That means less crabbiness for all of us. He's expanding his vocabulary on a daily basis. This week, his favorite is "DOORA." He still struggles with Dada, but he's got that girlfriend's name on the tip of his tongue. He's also climbing and crawling and causing more trouble than we ever knew possible. But with that precious little grin, we're learning to pick up the pieces and ignore the bruises as this "rough and tumble" boy learns his way around.

Ella finally tackled potty training like a pro. I mentioned that I called her school to check on when classes started, etc... and they told me that "all the boys and girls at preschool wear big kid pants. They don't poopy or pee-pee in their pants and they don't wear diapers anymore." That was a suggestion from a school and it worked! She stripped down right there in the kitchen and said "I'm a big girl too! I no wear diapers anymore." and she hasn't. We had a few "accidents" while mommy was in the hospital and then out of town on business. (more on those adventures later) but in the last 2 weeks, she's worn her big girl panties all day long, she's started going on her own without being prompted, she only wears 2 diapers a day for nap and bedtime. It's been a long-time coming, but we couldn't be happier that it's finally happened!

I was in the hospital for a couple of days last month. Remember that whole "you're not having a heart attack" episode? Well, it happened again only this time, they found out why. I have a faster heart rate than I should. It's been that way since I had rheumatic fever in college. (let that be a lesson to never think strep throat can just go away on its own because you're a fun-loving college student!) Anyway, they did a whole battery of tests on my heart, blood and brain, which all came back great! So all they've done is put me on a beta blocker to slow down my heart rate and they say that will take care of things. Scary at the time, but now we know how many things are going well within this body, so that's a relief. We also got another look at the meningioma (brain tumor) and we're waiting to hear the measurements on whether it grew in the last 3 months. My next MRI isn't scheduled until October, so this was just a bonus while they checked other things during that hospital stay.

We're heading off for Minneapolis this weekend to celebrate the fourth with our friends Dane, Dena, Deuce & Dutch! It's sure to be a long car trip for the kids but we've stocked up on snacks, movies, and the potty seat! We're looking forward to a great time!

Monday, June 9, 2008

Caged


Don't call DFS, I'm sure this is not the kind of photo you should show off, but I find this hilarious!

We try to make the basement a play area so our kids have room to move around and enjoy a larger space. They decide what's most fun is closing themselves in the dog kennels.


The Power of Peer Pressure


Even as a toddler, I guess there's nothing more influential than what "everyone else is doing."

I was about to give up on Ella's potty training. I called her preschool late last week to find out the first day of classes, because that's my drop dead date. Either she's potty trained, or she can't go. We've already agreed, it happens when she's ready and if she's not potty trained, we'll just wait and start preschool when she's 4.

Our little lady hear me talking on the phone about school and asked if she was going. I explained that yes, we hope she's going to school with Sophie in the fall, after her third birthday. But I used the advice from some of our friends and mentioned that "the teacher told me that all of the girls and boys at school are done with diapers. They all go pee-pee and poopy in the potty." That was apparently the motivation she needed. She stripped right there in the kitchen floor and ditched the diaper. "I wear big girl panties, I go school with Sophie."
That was 7 days ago, and we've gotten up every morning since and put on big girl panties. We did have a couple of accidents, one in the urgent care, and the other in our kitchen floor. We do still wear a diaper for nap time and for bedtime at night. But otherwise, she's been "taking care of business."
I'm amazed and how she's suddenly embraced this. I do have to remind her and prompt her to go on a regular basis. But she's starting to grab herself when she needs to go, so I catch that and remind her what that feeling means. I think we'll get there and I"m so proud of her!

While Daddy is probably not happy about her showing off her "booty" in these photos, I think they're pretty cute. We rewarded her first full day with dry panties by buying some new Little Mermaid panties. As you can see, they're a big hit!

Thursday, May 22, 2008

Tanning for the Ages

We were the girls who used lay out on her parents' back deck slathered in baby oil. (or Crisco Oil if we were desperate) The girls who bought a 1 foot, inflatable swimming pool, just big enough to hold out two inflatable air mattresses so we could float on water and get a deeper golden brown. (after we scorched our skin off!) The girls who thought darker was better, and we couldn't wait to get those summer tans. I used to say, stupidly, "we're all gonna die sometime, we'll just be a crispy golden brown." We were young and stupid and if we'd only known then what we know now...

It all changed three years ago for Kimmie and for me too. Who knew a mole that got bigger during pregnancy and didn't get smaller, could change our lives so much? She had skin cancer and our young, irresponsible tanning days were over.

I haven't had a tan since. No sunbathing, no tanning beds. I'm a Nazi with my kids and the sunscreen. I wear sunscreen in my moisturizer every day. So today was special.

We tanned together again, for the first time in years. But this time around, our tanning has grown up a bit. We went together, watched one anothers' kids, and we took turns. Each of us, put on a shower cap, stepped into a booth, and let a machine spray on our first tans of the summer. It's different, but I loved it. I loved that Kimmie and I were able to do it together, that even though she has those nerve-wracking 6 month check-ups, she's cancer free.

If I could go back, I'd have taken better care of my skin, spent less time in the sun, worn more sunscreen, etc... The one thing I wouldn't change is Kimmie. She's crazy and silly and caring and I'm so lucky to have her as my friend.

Thursday, May 15, 2008

It works

So far, so good. Ella has been sleeping with the dogs for 5 nights now. She's sleeping through the night, the screaming and fighting to go to bed is minimal and it usually stops completely as soon as the dogs are on her bed.

It pains me to think she was lonely. But I'm glad we held out and didn't wind up having to stay with her every night until she fell asleep. I can't tell you how many fellow parents have warned us not to start a habit we can't stop!

The only drawback to this, the dogs usually wake up when Troy jumps in the shower or when Alex cries out, so Ella is waking up at that time as well, and it's a little earlier than usual. It's fine for me, since I'm usually awake anyway, but she's a little more tired and crabby in the morning.

Still, I'll take the good sleep we're getting versus a little crankiness anytime!

Saturday, May 10, 2008

Could it be?

I hate to say this out loud, because I might jinx it. But something happened this weekend that could solve a problem for us, and make everyone in this house a little happier. (At least, everyone with two legs, versus four. )

Ella doesn't like going to bed at night. It's been a change over the past year or so from baby to toddler and it's been tough to adapt for all of us. We've tried following the suggestions to keep her in her room, not bring her to bed with us, and to let her soothe herself to sleep with a regular nighttime routine. For you regular readers, it's no surprise, what we've received in return are some sleepless nights with HOURS of screaming and crying from the parents, as well as the child.

It's excruciating to hear your child cry out for you and not immediately answer that call. I can only do it, because I hope I'm training her to be self sufficient, and able to sleep on her own. But it's the hardest thing I've ever done in my life and I hate every single second of it. It literally reduces me to tears, sitting there, listening to her scream, and waiting for that clock to tick off the interval until I can go in again, even for just a few seconds.

She's been asking the dogs to come in and snuggle with her at bedtime, while we read stories, etc... they usually do this anyway, but just this week, she asked me to let Doodle stay while she napped in the afternoon. For those of you who haven't met our dogs, they're not small. Daisy (or Doodle Doo as we usually call her) is an 80 pound yellow lab/ golden retriever mix. Lola is a 45 pound husky/ shepherd mix. They're wonderful, protective, sweet girls and they love these babies to death. But they're also very active. They run, play, and jump at almost every creak or crack that might be heard. They normally sleep in our bedroom, on dog beds at the foot of our bed. It's taken Troy some real patience to adapt to this, but he's learned to ignore their scratching, dreaming, and snorting throughout the night. Getting them to lie still so a little girl can sleep is a whole new ballgame.

I tried it Friday afternoon, when Ella asked, and they just wouldn't go for it. First of all, Daisy was in there alone. Lola wanted to eat, so Daisy just whined at the door for 30 minutes until I let her out. Of course, Ella was heartbroken. I had to convince her she hadn't done anything wrong, this was just something we'd have to work on, to "teach" the doggies how to stay in her room. We'd ask Daddy for help this weekend.

So I mentioned it to Troy and we decided to give it a whirl. We tried this afternoon, and again, after about 30 minutes, they wanted out, so we opened the door and broke Ella's heart again. I explained again, that we were "teaching" them, and it's hard to learn something new, so we'd try again tonight.

Bedtime came, she asked for them and even closed the door when she went to potty and brush her teeth, so they wouldn't get away. We left them and Troy even coaxed them up onto her bed for snuggling. They didn't stay up there long. We heard her several times calling them, calming them down and getting settled herself. But they all got quiet, within about 30 minutes. A couple of hours later when Troy went to get the dogs for a bathroom break, they were waiting at the door, but Ella was sound asleep!!! Yippee!

Here's my theory and no, I'm not an expert, just a mom who's thought about this over many sleepless, scream-filled nights: Ella is incredibly social. (can't imagine where she gets that) Most nights when she doesn't want to go to sleep or doesn't want to stay in her room alone, she simply wants someone to talk to and play with. She will wind herself down, but she hates doing it alone. If I'd stay with her, eventually she'd go to sleep, but she'd drive me nuts first! I try to close my eyes, but she'll poke them, pretend she's a princess with a "magic kiss" to wake me up, etc... She just loves the companionship. Maybe those dogs are our answer. As long as they're in the room with her, she's not alone. I hate to think she's lonely in there. If the dogs can give her that comfort to find peaceful sleep at night, I'd know there was reason for re-seeding our backyard each year and spending $40 a month on dog food for sensitive stomachs.

They are her best friends, especially Doodle. I don't know why we didn't think about this sooner. I guess I worried that they'd all 3 keep one another awake. I did tell her tonight, that if the dogs weren't resting, the best thing to do, was to pretend to be asleep. I said, " If they think you're up playing, they'll want to play with you. If you're sleeping, they'll want to snuggle and sleep too." Who knows, maybe it worked, maybe it's a fluke?.

No if we can get them to go back in there, and spend the night so she'll have that comfort when/ if she wakes up, we're in business. I won't hold my breath, but what a Mother's Day gift that would be!

Wednesday, May 7, 2008

Bippity Boppity bothered...


You can't make stuff like this up. Ella has a pencil, un-sharpened, which she calls her magic wand. I think it has stars on it and came in a party gift bag from some birthday gathering, so we just go with it. It's easier than sharpening the thing and then having to wipe the lead marks off everything in the house.

Just recently she's picked up on the Fairy Godmother from Cinderella. She calls her "Boppity Boo." I recorded Cinderella III for her last week, and that was too scary. "Boppity Boo" was turned into a statue in the first few minutes by the wicked step-mother and Ella was reduced to tears.

But she does use those magical words when she's waving her wand around... "Bippity, Boppity, Boo!" She's usually trying to turn the dogs into a prince or a horsey or something... but last night Alex was her target. She sat behind him as he was loving mommy and daddy. She waved the wand and out came the incantation: "Bippity, Boppity, Boo, now you go away baby Alex!"

Perhaps all the birthday excitement has taken a toll on her need for attention. Perhaps she doesn't want to share all those fun new toys he received as birthday gifts. Perhaps, she's just ready to have mommy and daddy all to herself again.

Needless to say, after a few giggles, we discussed why we love having baby Alex around, how much fun she has with him in the tub or on their swing set, and how much he loves his big sister. I hope she's getting all this or he's likely to be turned in to a toad!




Monday, May 5, 2008

Cinco de Alex (First Edition)


Happy 1st Birthday Alex! Mommy has a special note for you today
Dear Alex:

I'm ashamed to admit that at first, I really didn't want a little boy. I was hoping that ultrasound would show us another girl. Mostly because I was afraid. I wasn't sure I'd know how to raise you as a strong, caring, loving man. I was afraid I'd make you a momma's boy or a wimp, or a worse. But I just decided if Troy was with me, I'd figure it out, God surely knew what he was doing, so I'd go with his plan and trust it. I had no idea how much you'd change my life.
You're so snuggly and sweet, more so that your sister ever was. She was more animated, but you're more loving. You smile the second I open your door every morning, and smile again before I close that door each night at bedtime. I can't tell you how that smile lights up your face and my world.

You're so patient, easy going and loving with your big sister. You let her push you around, take your stuff and still call for her when she leaves the room. It's no wonder her name was your first word. I just wish you were patient when you're waiting for those Cheerios and milk in the morning, and I'm trying to get the coffee brewing!

You're so stinky! I had no idea things coming out of such a little body could smell so bad!!! But you are amazing. Even the medical community and our lifelong babysitter are surprised at how your stench can clear a room. Daddy says you've got game already! He's so proud of his little man.

You're so special to me. I love being your mommy! I can't imagine what my life would be like without you my boy. I love buying cars and dinosaurs and trucks and trains and even watching you snuggle with a stuffed puppy and play in your sister's doll house. You are the sweetest little boy ever. It's so different, and so fun having a boy around here!

You're so important to me and Daddy. I've never been so scared as I was when you were sick and spent those 2 nights in the hospital last fall or when I thought this brain tumor might mean I wouldn't get to see many more of your birthdays.

You tug at my heart at least once a day. (or once an hour) You're almost ready to walk and you just started calling for "Mmmmmmmah" this month. That sweet sound is music to my ears. I love you my little buddy.


Happy 1st birthday
All my love,

Mommy xoxoxoxoxoxxoxoooo


Monday, April 28, 2008

Bye, Bye, Baby Boy


My boy is just a week away from turning one.
We've had a lot of milestones in the past few days, and it made mommy a little sad.

He's switched from formula to milk, switched from milk to sippee cups, switched from baby food to real food, you get the picture. He's already cruising all over this house holding onto things, and he can crawl faster than most cockroaches! Belive me, I used to work in fast-food and live in cheap apartments, those suckers can move like a flash when the light comes on! I nearly trip over him at least once a day.

It's amazing to watch how quickly he masters things. But it's also sad to think that just a year ago, I was anxiously awaiting his arrival and then soooooo enjoying this new little person in my life.

He's already turning into a pushy, brut, just to compete with his bossy, big sister. But he'll always be my baby boy. At least until Troy lets me have another one.

Friday, April 25, 2008

The Waiting Game (we lose)


I'm a scheduler and a planner. It comes from years of back timing everything to get my newscasts on and off the air on time. I back timed my workdays. Now that my number one job is raising for the kids, I back time our lives. The goal is always the finish line. Getting things done on time.


With Alex, almost 1 year old, and Ella, 2 and a half, that's easier said than done. I plan in lots of pad time. Extra 15 minutes here for a snack. extra 10 there for diaper changes and nose wiping. I try to cover all my bases.


Alex will turn one on May 5, and I wanted photos of him to mark the end of this first year. I also want to send them to friends, family and the grandmas and great-grandma for Mother's Day. So I scheduled an appointment last Sunday morning. This is MAJOR national photo chain. They have great prices, they take good photos, it's not too expensive. We've had relatively good luck with them in the past. Only once did we have to wait a little longer than expected. I thought scheduling when many families were still at church would be ideal. We got Alex a morning nap, had a quick snack and few drinks of milk, brought the clothes with us, so no one would get messy or wrinkled on the way, and headed out.

Perfect timing, we arrived just 5-10 minutes early. Just enough time to get everyone dressed, coiffed, and picture perfect. But wait, we're running a few minutes behind, it will be about 20 minutes. That's okay, 20 minutes is in the pad time. They shouldn't be starving or overly tired. There are blocks and other kids to play with, etc...

That 20 minutes turned into an hour and half. 90 minutes late! Before we even started taking photos. By the time we finished nearly 2 hours later than our scheduled appointment time, Alex was screaming, Ella was hungry too, and Troy was about to let it rip. They left, ,headed for the nearest McDonald's to get lunch, some milk for the boy, and escape the craziness of that lobby.

I spent 20 minutes picking the photos we wanted and really, bought more than I planned to, just to get out of there before I lost my mind. I think that's the catch. They book families 15 minutes apart in an effort to drive you nuts, so you'll just buy anything to escape!!!

We did get some decent photos. Not our best, but enough to satisfy my needs for the first birthday milestone. Next time, I'm using my friend Adam and his wife. They have small photography business that comes to you, works with your schedule, etc... and they just charge by the prints you want. Check them out at http://www.arephotography.com/.

I'll post a sample of what we left the national chain with. These are just the proofs which they gave us on a CD, after we spent half our life savings. Not making that mistake again.

My little fashionista


She comes by it naturally, the nut doesn't fall far from the tree, etc... I love clothes, shoes, purses, etc... and so does my Ella. But she's driving me crazy. I submit the photo you see here of her latest attempt at dressing herself. Yes those are pink camo jeans, a strawberry print shirt, and red/purple Dora socks, with the turquoise barrette as a finishing touch.
Don't get me wrong, I'm so proud that she can put on the shirt, pants, socks and shoes by herself and sometimes, even get them on facing the right direction. But the choices, I've having to learn to live with. She's a toddler and the outfits are, well, out there, but at least she's making her own statement.

Now for the real headache. She wants to wear so many things, at once, and all the time. I'll go into her room and find a fashion explosion, where she's emptied her drawers, put on as many things as she can, and left the rest for me to pick up and put away. I'm not saying she makes a few clothing changes, I'm talking she'll have on 7 pairs of pajama pants, 6 shirts, several pair of socks and shoes. Oh yes, the shoes, she sleeps in them, slippers, sparkly shoes, whatever strikes her fancy.

Troy has threatened to take all the drawers out of her dresser if she doesn't stop taking everything out and dumping it in piles on her bed. We've even put rubber bands on the closer doors to keep her out of there.

I'm trying to be flexible. I'll let her wear what she wants, even indulge the slippers and jewelry, but I can't keep spending hours re-folding and packing her drawers. Especially in the middle of the night, when she wakes up, decides it's all in her way, and wants me to get rid of it.



While Troy's away...

My man is off for boys' weekend and I'm home sick with a sinus infection along with two sick kids. Sounds like loads of fun, huh?! Troy has been planning this for weeks. He only made one night of the trip last year, as I was great with child and gave birth just 2 weeks later. Aaaaah the sacrifices we make, he gave up a night of drinking and fun, I gave birth, again. Enough said.

Actually I was supposed to have a bit of a girls' weekend as well. My BFF Kristi was flying in from Dallas to shop and visit with me and the kids. But she's a momma too, and when you've got this many germs in the house, she's afraid she'd take the affliction back to her own family. Who can blame her. I wouldn't want to be here this weekend either, if I had a choice.

Luckily, my parents answered the desperate call for help and came up to help me manage the kids. We're feeling a little better today, but the kids are cranky and not up for doing much. So, it's going to be a long weekend around this house.

When daddy gets home Sunday, I'm outta here! Shopping and prep for the big birthday celebration is in order, and I plan to do it by myself. I told Troy I"m already planning my next girls' weekend. Details to come, but it will involve a spa, a massage, and no one under the age of 30!

Maybe the kids will feel well enough that I can sneak out tomorrow during naps and make a few quick purchases. I planned to spend money while he was gone! Can't miss that opportunity!

Tuesday, April 15, 2008

Watch what you say...

Ella is like a little echo machine. I have to watch what I say and I know that.

She learned a couple of new words this afternoon when I dropped a stack of color books and stickers and markers, etc... off the top of a pair of serving bowls. (Don't ask why we keep them there. It's out of reach, out of sight in a cabinet, and well, precariously perched where something is bound to fall!)

The point of this post... Ella hears it and repeats. It doesn't matter what it is, and today it wasn't the sort of language I want my child to use or to use myself.

Troy happened to be on the phone with me at the time and got a good chuckle out of hearing his little angel say those two words like she was saying "peanut butter" or something as common. Something tells me he won't be laughing if she repeats them to her Sunday School teacher?! UGH!

Friday, April 11, 2008

It's bone"ish"


First, I thought you might want to see what we've been looking at for the last two months, as well as the latest image. You'll notice two weird xray looking images in this post. The profile shot which appears on top is from the MRI in February. You can see the white blob near the center of the top of my head. The second shot is the CT scan, which is shown more from the top of my head. Again, you'll notice the big white blob right on top.

We saw neurosurgeron #2 again today. He saw the same thing we did. The mass is there on CT scan as well as the MRI, so here's what it means. It's bone or some sort of calcification. That's why it showed up on MRI and on the CT scan, just like an xray. This is what raised the initial questions. Most meningiomas will only show up on MRI and then, only when they inject die to give it contrast. Now we know that this mass contains bone-like structure. That's something, but it doesn't get us a definitive answer.


It could be a bone abnormality which has been like that my whole life. If that's the case it won't grow. I'm an adult so my bones are pretty much done getting bigger, we can monitor and see if the size increases. We know it has not grown since the MRI two months ago, so he suggests we wait 6 months and have another MRI to evaluate. If nothing changes, we wait another 6 months and do it again. It could never change, and if that's the case, we have nothing to worry about and nothing needs to be done.

It could be a meningioma, which was the original diagnosis. Those are really slow growing tumors and sometimes they calcify or ossify, which basically means they turn partly to bone. If that's the case, it will, at some point, grow. But it could be years before it's noticeable. If and when we see ANY growth, they'll know it's not a bone and at that point, radiosurgery can stop it from growing any further.

I asked if we're taking any risks by doing nothing. He said the only way to know for sure what it is, it to cut it out, and he said "I wouldn't let you cut into my head at this point. I'd hold off until we know there's a reason to get it out." He also says while her can never say "never" he is 99% sure that this is not anything worse than a benign tumor. He says he's never seen anything malignant turn to bone, those types of cells just grown and replicate too fast for that.

So for now, we watch and wait, and if anything change in my symptoms, they'll do an MRI sooner. Otherwise, we'll schedule an MRI in 6 months and learn more then. We hope. Thanks for all your thoughts, well wishes, and prayers. We feel like we're out of the woods for now, regardless of what it is, it seems it's nothing to panic about, and nothing that will require anything more than the radiosurgery. That's a huge relief for this busy family!
(Thanks to Troy for helping me pull the images from our hospital cd-rom copy of the CT scan and MRI. If I violated any copyrights, sue me! It is my brain you're looking at , I think that should give me squatter's rights or something.)

Thursday, April 10, 2008

CT scan follow up

I had the CT scan earlier this week and we see neurosurgeon #2 again tomorrow to go over the results.

They sent the films with me on CD so Troy and I have already cheated and taken a look. There's a bright spot of contrast in the same location where the contrast shows up on MRI. We have no clue what that means, but hope to find that out tomorrow.

I'll try to blog an update if we find out any news at all.

In His Word(s)...


Alex is not the strong silent type, more the "I'll scream until you put that bottle in my mouth" kinda' kid. It really drives Troy nuts. I think he's an angel and he is pretty easy going. But when that kid is hungry and you don't have the food on his tray or the bottle in his mouth, get earplugs. If he's has something to say, he says it, loudly and you may not understand what he says, but you understand exactly what he wants you to.

Anyway, back to the point of my post. Alex has always been noisy, Much more so than his sister ever was. He coos and goos and started really babbling a month or two ago. I think the kid even purrs when he's happy. He has this weird little gurgle that he uses when he's smiling at me while I change his clothes and tickle his little tummy or nuzzle his neck. It's literally the sound of happiness! At least it was until today, when I finally heard my baby boy say a word! His first!

I read on one of those stupid baby website newsletters for "My 11 month old this week" that he should be babbling and saying words at this point. We have the babble down, but no words. Not Mama or Da or anything. Ella's first word was DaDa (which I assume was Daddy or Doggie), so I had high hopes for my boy. I've been working with him on MaMa and I could swear I hear him scream it some of the time when he's awake and desperate to be lifted out of the crib, but he makes lots of sounds when he's mad, so he could just be swearing in baby talk and I'd never know.

Today was different. He said it and recognized exactly what he was talking about. He said it again and again and again, until he got what he wanted. It wasn't DaDa, or Baba and no, it wasn't MaMa either, but that's okay. Alex's first word was Ella. He said it first and it sounded more like "Eh-yah." I heard it and turned to see that she'd walked out of the room where they were playing together. I asked if he wanted Ella to come back and he said it again. "Eh-yah." Then he said it 3 or 4 times right in a row, and you should have seen how hard he worked to move his mouth and lips into different shapes, trying to make just the right sound. It was precious!

Ella, after all is one of my favorite words in the whole world. I can't think of a better choice for the first word to come out of her little brother's mouth. (Ella's quite proud too! She thinks it's pretty special that he chose her name out of all the words he could have used.)

Wednesday, April 2, 2008

Baby Robinson #3

NO! We're not pregnant and not trying.

But I don't want Troy to "get fixed" because I haven't signed off on the possibility of having a third baby. (Plus, I insist if the brain tumor kills me he'll have to remarry and his 2nd wife may want a kid. He HATES it when I say that, so I had to throw it in. I've even picked out a few gals who I think would be good options for him, now is that a generous wife or what! Seriously, I'm just looking out for who I'd want around my kids on a full-time basis, but this is another post completely.)

Anyway, back to babies... something lately just has the urge stirring. Maybe it's that Alex is about to turn 1. Maybe it's that he no longer wants to sit quietly on my lap and snuggle, he'd rather race around after his sister and fall off of things to inflict more bruising.

He did fall asleep in the car a few nights ago and when I lifted him out of the car seat, he was still out cold. This is rare, so I just sat and enjoyed. He was snuggled up with his head and hand on my chest. I could feel his breath going in and coming out, it was precious and magical! I just couldn't imagine not having a baby nuzzle in like that again!

I told Troy I think I want a third, and he told me he thinks I'm crazy. For now, we can't get pregnant, because if I need brain surgery of any kind, the neurosurgeon wouldn't want me pregnant. But all 4 doctors (5 if you count my OB) still tell us it's an option in spite of the tumor and treatments.

So if and when the time comes, we'll decide if we're up for the family of 5, or not. I'm perfectly content with the family we have. All I ever wanted was to be a Momma, and I got that with my precious Ella. I've said the rest of my life is just gravy, so I guess Alex is the best little gravy I've ever snuggled up and giggled with.

What does that make a possible baby #3? Perhaps the perfect dessert, or a glass of Grappa if you're Troy. Either way, I'm not ready for the waiter to bring us the check!

Neurosurgeon #2, he's a keeper

Finally a doctor I respect, understand and like. This one's a keeper. (I'm sure Troy's glad to hear that, he's sick of coming along for these 2nd, 3rd and 4th opinions, with a $50 copay for each, but he's been a trooper!)

We left again, with no more definitive answers, but more information on why there are so many questions. Let's start at the beginning:

- what is it? he doesn't know, and here's why: He thinks it is probably a meningioma, which was the initial diagnosis. (by the way he says there is only 1, the second blip only shows up on 1 slide, so he doesn't think it's actually anything to note) But this doesn't show up like typical meningioma. When you get an MRI they take pictures of slices of your brain. They do it from top to bottom and front to back and side to side. Then they inject you with a contrast dye and take the same pictures again. Meningiomas typically only show up on the second set of pictures, after you get the dye to light it up. Mine shows up on both sets of pictures, which leads them to view the mass as something else, possibly containing bone, or marrow, or blood. It could be a bone tumor, it could be a fatty tumor, it could be many things, so they want to rule some of those out BEFORE treating it as a meningioma. That's good news. We like knowing that they want to be sure of what it is, before they zap it with a laser or cut it out. Good call!

- what do we do about it? he doesn't know, and here's why: If it's bone or another type of tumor, we have to treat it differently. If it is a meningioma, they're slow growing, rarely cancerous and still eligible for both options radiosurgery, or the traditional crainiotomy (brain surgery). But we can't decide what to do, until we know more about what it is.

- how do we find out, and when will we know? we do more scans and hopefully in 2-3 months, we'll have a more definitive answer. They're scheduling a CAT scan right away. That will show him if the mass is bone, and then he can work to further determine if it's a bone tumor, abnormality, or whatever, and we'll move in that direction. In 2-3 months, he suggests we do another MRI, which will help determine the growth rate. If it's slow growing, like most meningiomas, we can then determine what to do and when to do it.

- do we need to remove it? yes, most likely, we do, the question is when. Meningiomas are slow growing, but I'm young and I will likely have to deal with it at some point before I die. If we discovered this when I was 92 years old, he'd say ignore it, you won't be around long enough for it to matter. It's NOT causing problems now, so it doesn't need to be removed immediately. If it's a slow-growing, meningioma, then it could be 20 years before it's large enough to put enough pressure on any part of my brain to notice a problem. So yes, in theory we could wait an not have to deal with it for years to come. But, I'd be older then and you always recover better from surgery when you're young, plus, when it's smaller you have more options such as the radio surgery. Once it's bigger, your only option is full blown brain surgery.

- what are the surgery options and which is best? the second half of that question is tough to answer, but we'll know more about what's best when we know what it is. There are basically two types of procedures for us to consider a crainiotomy (knife into scalp, saw through scull, cut out tumor tissue and close head back up) or radiosurgery (targeted radiation rays blasted to exact point in my brain to freeze tumor and stop future growth.)

- what are the pros and cons of crainiotomy? pros, you remove the tumor and any questionable surrounding tissue, you do pathology on the tumor to determine exactly what it is and if it could cause future problems elsewhere in your body. Cons, this is brain surgery. You spend 2 days in intensive care, 4-5 days in the hospital, minimum of 2 months before you get energy and ability level back, plus setbacks after that. Oh, and they have to shave some of your hair off.

- what are the pros and cons of radiosurgery? pros, no cutting, no shaving, no scar, you don't even get undressed for the surgery, you leave the hospital the same day, you can drive yourself home (but they don't suggest that) Cons, the tumor stays in there, it just stays the size it is and the radiation stops it from growing any larger which would cause the future problems, you don't get to do pathology, so you don't know what it is, or whether it could cause future problems down the road. (upside of that is, I'll have to get an MRI and CT scan at least once a year for the rest of my life, so if something did turn up, we'd know quickly.)

- what next? We schedule a CT scan in the next week or so. That will tell him immediately if it's bone which leads in a new direction, if it's not, we'll continue to assume it's probably a meningioma. We schedule a follow up MRI in 2-3 months and see if it's grown, etc.. and we come back to see him. (unless of course something important is revealed in the CT scan, then he'd want us back immediately for a completely different set of options, but that's not what he's expecting.)

- are we wasting precious time? no, he doesn't see anything to indicate this is fast growing and even at 2.7 centimeters, he says I'm a long way from the radiosurgery cut off points. He say that rather than a round ball, my tumor is long and skinny, like a comb. That makes it easier to target all the outside of the tumor, so it can be 5-6cm long and still be okay for radiosugery.

- what about the possible mini-stroke? he doesn't think that's the case. he thinks the spot on my brain is from the migraine drug reaction, when I thought I was having a heart attack and experienced the numb, tight, weak feeling on my left side. He thinks that did kill some brain cells, which is what showed up, but that's deep in the center of my brain. He says the risk of stroke from birth control pills is in the large blood vessels of the brain, and he doesn't see ANY problem there. His advice was to weigh our options, if the ovarian cysts are also a threat to my lifestyle, he says to go back on hormone and control the cysts, but preferably just progesterone and not estrogen. We're waiting that out for a month or so to see how it goes.

Okay, I think that covers the basics, so now you're as up to date as we are. More to come after the CT scan, if it shows anything or after our follow up in 2-3 months. Until then, keep the good thoughts and prayers coming!


Herpes! or Crazy Lady with the virus


It's not a word anyone likes to use, but yes, Ella has herpes. It's technically Herpes simplex 1. This started last Wednesday morning with a sore neck (throat) and fever or 102. We went to the doctor, he ruled it a virus and sent us on our way.

Friday: fever or 104, we learn we've been exposed to mono, she's complaining that her teeth hurt, we go back to the doctor, they do a mono test, urine test for a bladder infection, rule it a virus again and send us on our way.

Saturday: more complaints that her teeth hurt and we can see a cold sore by her lower molar, so we start using Chloraseptic and Ora-jel as the doc recommended to help ease the pain. We continue Motrin and Tylenol every 4 hours to keep the fever down.

Sunday: I'm not kidding in you Ella's mouth smelled worse than her butt! Her gums were so swollen you could barely tell she had teeth at all, and her gums were bleeding because the teeth were cutting into them. She had stopped eating, drinking, etc... She begged for food, we just couldn't get her to eat once we made it, because it hurt SOOOO bad. Mommy gets on the Internet knowing this is not right and child should not be in this much agony. Since Friday night, Ella has not slept for more than 2 hours straight. She wakes up (sort of) screaming for the spray and swabs on her gums, but this numbing only lasts temporarily. Mommy also calls the nurse at Children's hospital who tell us to have her rinse her mouth with Maalox or Mylanta, since it has a numbing agent, who knew!?

Monday: Mommy drops Alex at Laura's house and head's to Urgent Care at Children's hospital to find someone who won't think she's a crazy lady with a virus that insists her child is in agony!!! Everyone takes a look at her smile and almost cries. It's ugly and she's miserable. She's now lost 4 pounds in 5 days which is a lot when you only weigh 30 lbs. to start with! The doctor takes a look and I throw in "I know I'm not a doctor, but I tried to find some help on the Internet, could she have herpes?" Da da da da!!!!! DING, DING, DING! "Yes, that's exactly what I think she has!" I love this doctor! I am NOT CRAZY! MY CHILD IS IN PAIN, PLEASE ACKNOWLEDGE THIS AND HELP HER! The doctor indicates this does happen to a few kids when they're exposed to the herpes virus for the first time. Most of us would just get a cold sore, Ella now has hundreds of these ulcers covering her tongue, gums, cheeks, tonsils and throat. She is miserable and the doctor indicates she will need narcotics to make it through the next 7-10 days! My POOOOOR baby! They use the magic mouthwash with is the Mylanta the nurse mentioned mixed with Benadryl to help soothe and calm her inflamed gums.

Tuesday & Wednesday: We now do the magic mouthwash rinse 6 times a day and Ella actually looks forward to it, because it helps her mouth not to hurt. We also have Tylenol with Codeine. We've been using that mainly at bedtime, although yesterday she got really upset and mean about half way through the day and she asked for the mouthwash. I checked and her gums were bleeding again, so we used it during the day as well. They gave us enough to give it to her around the clock and said not to be afraid to use it to keep her comfortable, so that's what we're doing. She's been sleeping through the night and is eating soft foods in small amounts if we give her the mouthwash first, we've done Spaghetti O's and popsicles and a banana.

Lesson learned: NEVER let any doctor make you feel like you're overestimating or exaggerating what's happening to your child. I knew she was in pain and something wasn't right with the teeth and gums. I could and should have taken her in over the weekend and gotten her some relief instead of waiting until Monday, but I was afraid to be labeled as that crazy lady with the virus, who just won't give up. I'll never give up when it comes to my kid, so back off! I've got a degree in journalism and I'm not afraid to use it! You haven't seen pushy until you push me!

In the meantime, we're tolerating the stinky breath and hoping the gums will heal back up soon. (the photo is pre-herpes, just a sweet shot of her smile!)



Easter in KC






Saturday, March 29, 2008

Ella's Excellent Adventure


I have to give credit where credit is due. Those PR and Advertising folks who come up with the commercials for Orlando, Florida know exactly who their target audience is and exactly how to reel them in. I'm guessing that's how we encountered our latest adventure in parenting.

Ella decided earlier this week that she needed to go see "the castle." She says this every time she watches "Enchanted", or sees a Disney commercial, or the opening graphics of ANY Disney movie, because yes they show a castle. So Troy and I explained to her that there was a real "Cinderella castle" and someday, maybe we'd go see it. (Mistake #1)

Then she saw the Orlando tourism commercial with the castle and beaches, etc... and decided "Ella needs to go beach." We explained that she's actually been to the beach, when we went to Florida for Troy's brother Nick's funeral. We even pulled out the picture and showed her playing in the sand, eating sand, picking up shells, wading in the water, etc... (Mistake #2)

She decided she wanted to go back to the beach Wednesday night, and she wanted to get there now. It took us awhile to explain that the beach is a long way from Ella's house. We can't get there in just one day, it's far away like Grandma and Grandpa Robinson's house in Florida, and we have to fly in an airplane to get there. (Mistake #3)

We've tried to explain that we need to buy tickets, but Ella insists the Hello Kitty paper she has will work just as well. We've told her that we need to make plans to take a trip like this. She's not buying it.

Our original plan has been to stick close to home for a few years, until we can all travel a little more easily, and Alex can walk and enjoy the activities too. But life is short, and my health scare has us talking about things we'd like to do, while we have a chance. There are pluses and minuses either way. So we'll consider and reconsider. In the meantime, Ella may forget about this and move onto something new. Maybe she'll want to visit the North Pole next week?!

Thursday, March 27, 2008

Who knows?

A little further research reveals that bone tumors are sometimes referred to as "bone bumps." So we still don't know what we're dealing with at this point. Could be a tumor, or not. We probably won't find out until we talk to the doctor next week. And even then, who knows. Not a lot of answers lately, just more questions.

What information we can find leads us to think that his could mean the Gamma Knife would NOT be an option. I'd have to have an actual craniotomy if surgery is needed. That's scary. But I'm not panicking until we learn more. Much more to come after our appointment on April 2nd.

Also learned that the NIH has a 2nd opinion program for brain tumors, which is FREE, thanks to Federal Government cancer funding, and the NeuroRadiology Department at Johns Hopkins offers second opinions. I'm still waiting to hear a price range on that. At least we could get a few top in the field folks to weigh in on all this, and help us decide who knows what they're talking about. Before we let anyone shave my head and cut into my brain! Yikes! More to come...

Monday, March 24, 2008

It's NOT a tumor...

Depending on who you ask. We were anxiously waiting today, knowing that the Midwest Gamma Knife Conference was considering my case as a possible candidate for gamma knife radiosurgery. I didn't really expect to hear anything back immediately. I've already scheduled an appointment with one of their neurosurgeons for next week. But this conference is a weekly meeting of all the directors for this Center. They include a neurosurgeon, neuro-radiologist, neuro-oncologist, etc...

I got a call about an hour after the conference today. The coordinator says they don't think either of the two areas of contrast which show up on my MRI are meningiomas. In fact, she says those were the first words out of the neuro-radiologist's mouth. He says they're not meningiomas, they're "bone bumps." She said the doctor next week can explain much more thoroughly, but that they can see bone marrow in the growth, so they determined they are abnormalities in the skull and not invasive tissue.

I think that's good news. Because to me, non-invasive means they won't expand and compress brain tissue, which is the main concern of meningioma. I might not need surgery or any intervention whatsoever.

BUT, there's always that magical, mystical word to throw into the equation. Why is this the first time we've heard this:? Why didn't the first radiologist who read the MRI and provided a report see the bone marrow? Why didn't either of the 2 neurologists that we've seen or the 1st neurosurgeon indicate this? My thought is that most doctors don't really understand the MRI films themselves. They just look at what the radiologist puts in the report and it's "okay, I see that white blob on screen B6, makes sense to me."

I'm hopeful that this neuro-radiologist is a specialist, trained to look at films of the brain and that because he viewed my MRI films in this conference setting with a handful of other doctors, they were able to discuss and concur on what they saw on my films. We plan to discuss this at length with the 2nd neurosurgeon at the appointment next week. We're hoping we can convince him to order a second MRI immediately, and let another neuro-radiologist take a look to get us a concurring opinion. That would be a first! Doctors with the same ideas, thoughts and opinions on my brain!

Until then, we're just keeping our minds open and hoping for the best information.

Sunday, March 23, 2008

Lip gloss reprieve

Troy decided to go against his better judgement and order a new tube of the $20 lip gloss I so loved and blamed him for losing.

He says "on principal, it's not my fault" but his experience as my husband got the best of him.

He realized he could stand on his "principal" or avoid the nagging for weeks maybe months to come.

He opted for the latter, and my tube of "RaZZ my Berry" arrived Friday. Love it even more the second time around.

And for the record, I was sedated. I still think it was his fault. But you're forgiven baby!

A little help from my friends, and my job.

I always knew God had a plan. I rarely know or understand that plan, but that's why we call it faith. So when I decided to leave TV and enjoy my family, I had no idea my new position would be such a great fit, and so important to my life choices down the road.

I know I've blogged about this before, but it's never been more important than it is to me now. Since we learned of my brain tumors, I can't even express how grateful I am for every single moment with my children. Even when they're screaming or snotty, or smearing blackberries all over my kitchen. I treasure my time with them.

We're over the initial shock of the "brain tumors" diagnosis. I've started to come to grips with the fact I'm not going to die tomorrow, unless I'm hit by a bus or something. The tumors are not likely to kill me. But, there is always that underlying thought of my mortality. It truly makes me realize that leaving TV is never going to be a decision I regret. Having this quality time with my children, being here for all the "firsts" is irreplaceable. So thanks #1 is for the flexibility my job allows to spend the time I need with my family.

Thanks #2 is for the fact that I work with an amazing staff of professionals. I can literally call up a co-worker and ask "Who do you know at Mayo? I need to see a neurosurgeon." and in minutes I have names of the very best. That's reassuring when you're searching for answers to help make one of the biggest decisions of your life! Lorrie never even skipped a beat. She was on the phone, sending emails and finding what I needed to make my life a little more directional at that point. Thank goodness for her calm, level-headedness when I so desperately needed to know I could find help! She's a brilliant mind, a great resources and a kind and caring friend when I'm at my most vulnerable. I'm so grateful for that.

Thanks #3 is for all the friends I've made through my new job. Tara is my working mommy counterpart and so much more. We have toddlers (Colin and Ella) and babies (Delaney and Alex who were born just 6 days apart) plus working husbands, etc... so we're kindred spirits. We've both faced the challenges of balancing work and family and it's only gotten crazier since we added baby #2 to each family. I can call her anytime (and vice versa) to ask about puking, or a rash, or "listen to this cough" or "can we got out for a drink with no kids tonight?!" She's so supportive of me both in the workplace and on a personal level. So, in case I haven't told you recently my friend, I'm so grateful for knowing that you've got my back.

Those friends are not only the people I work with, but the families I serve. Karen was the first person I asked about brain surgery. She explained what it involves, how you recover, the head shaving, the scar, covering it all with hairbands, scarves, etc... I needed some frank answers and she had them.

And then there's Julia, the mommy who can get anything done! She doesn't take "NO" for an answer when it comes to the health and care of her two children who suffer from a life-threatening disease. I should have known she'd have more information about working around my insurance than I do. When we found out I couldn't go to Mayo, unless we pay out of pocket, Julia immediately had more information. Now I know how to price shop, what to tell them about the fact that I'm paying myself, etc... Who knew you could negotiate for cheaper medical care? But apparently, that' s how it works when you want 2nd, 3rd or 4th opinions. I can't thank you enough for helping me to navigate the health care system.

I just know a little more every day how this job change and choice must have been part of God's plan for me. I would never have met any of these wonderful people, made these amazing connections, or spent this special time with my family if I hadn't asked for God's guidance, listened to his will, and followed his plan. That's all I'm saying... you fill in the blanks for yourself. They could be life-altering for you too!